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Old 11-09-2013, 12:08 PM #1
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Default Possible Ehlers Danlos Syndrome

I am still trying to figure out what is causing all my symptoms. I have a physiotherapist who is supposed to be pretty good at figuring out unusual cases. He has suggested part of my problem might be related to Ehlers Danlos Syndrome. I was very flexible before all the car accidents I have been in (none were my fault ) last one I was just a passenger. I used to be able to put both my legs behind my head and in general had hypermobile joints. I still have more than expected passive mobility. I have always had a lot of bruising and when having blood drawn they normally have to use a butterfly needle. I have had migraines since the age of three.
I also have Malignant hyperthermia, Fibromyalgia, osteoarthritis, degenerative disc disease, GERD, Scoliosis, TMJ disorder, possible rheumatoid arthritis (xrays say yes bloodwork says no), stenosis of cervical spine, tethered cord, stricture in my esophagas, narrow angle glaucoma, constant headache since 1996 back of skull, top of skull, forehead more pronounced on left side, migraines left sided, cluster migraines, Hashimoto's Thyroid. I am probably forgetting something.
Most annoying symptoms can't pick up my feet when I walk, I shuffle or drag my feet. Can't lift up my arms, I have to bend over to wash my hair. Can't open my mouth enough to get the stricture in esophagas stretched or regular dental work, exam cleaning etc. I have lost my independence because I can't drive a car or even walk in the back yard or to the park.
Any suggestions or information would be greatly appreciated.
Redcat
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Old 01-11-2014, 07:51 AM #2
CatsPajamas86 CatsPajamas86 is offline
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Originally Posted by redcat View Post
I am still trying to figure out what is causing all my symptoms. I have a physiotherapist who is supposed to be pretty good at figuring out unusual cases. He has suggested part of my problem might be related to Ehlers Danlos Syndrome. I was very flexible before all the car accidents I have been in (none were my fault ) last one I was just a passenger. I used to be able to put both my legs behind my head and in general had hypermobile joints. I still have more than expected passive mobility. I have always had a lot of bruising and when having blood drawn they normally have to use a butterfly needle. I have had migraines since the age of three.
I also have Malignant hyperthermia, Fibromyalgia, osteoarthritis, degenerative disc disease, GERD, Scoliosis, TMJ disorder, possible rheumatoid arthritis (xrays say yes bloodwork says no), stenosis of cervical spine, tethered cord, stricture in my esophagas, narrow angle glaucoma, constant headache since 1996 back of skull, top of skull, forehead more pronounced on left side, migraines left sided, cluster migraines, Hashimoto's Thyroid. I am probably forgetting something.
Most annoying symptoms can't pick up my feet when I walk, I shuffle or drag my feet. Can't lift up my arms, I have to bend over to wash my hair. Can't open my mouth enough to get the stricture in esophagas stretched or regular dental work, exam cleaning etc. I have lost my independence because I can't drive a car or even walk in the back yard or to the park.
Any suggestions or information would be greatly appreciated.
Redcat
I know it's been a while since this was posted, but just so you know everything you described are caused by Ehlers-Danlos Syndrome. I have nearly everything the same as you and was having the same problems with my neck and lost the use of my arms. I had surgery with Dr. Fraser Henderson to fuse my spine and it helped me so much, night and day difference.

Last edited by Chemar; 01-11-2014 at 08:00 AM. Reason: NT guidelines on linking for new members
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