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Old 11-20-2013, 02:49 AM #1
JFlighttt JFlighttt is offline
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Default First post. Multiple symptoms hard to deal with. Please help

Hello everybody, Brian here, first post in the community.

Not sure where to start but I'll start out saying I have changed dramatically over the past couple of years and it's really hard to live with the issues I am facing.

Going back through childhood, grew up as a normal kid, fulfilled life and had a lot of fun. Coming towards the end of high school ( i am 19 now) things started to change and I lost the person who I used to be.

My current symptoms on my everyday basis are:
Depression
Derealization; Depersonalization episodes from time to time, quite often
Anxiety
Anhedonia
Tiredness ALWAYS
Disrodered thinking, thinking in unusual ways and perceiving things very unusually
Distorted/unusual view of reality
Insomnia and OCD (rumination on thoughts and in my mind for hours when trying to fall asleep)

I have been feeling this way for I would say about 2 years. I am living in a very strange and frightening world that anyone can only imagine to see in a nightmare.

What brought me to this community was my research on myoclonic jerks.

I was laying in bed, closed my eyes and tensed up my abdominal area and a giant rush through my head is what I felt as well as the body sense of "falling" and it almost felt like an orgasm through the whole body is how I would describe it. An absolutely severe and intense body sensation that caused me to do very severe myoclonic spasms in my abdominal region for a second or so and then I give up because it is frightening. Whenever I try to relax with my eyes closed I will jerk/spasm uncontrollably mainly in the abdominal area.

I am having a hard time coping with what is going on and why.

My question would be is there any type of testing I can do at a hospital or anywhere to see if I have some type of neurological issue that hasn't became a problem in my life until recently?

I am currently on Lexapro-2 weeks in (10mg) and Trazadone to help me fall asleep.

Thank you for your time and PMs are recommended if any further personal details need to be announced.
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Old 01-03-2014, 10:41 PM #2
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If you've had this going on for 2 years you would need to see a doctor about it. Those are rare symptoms to have all at the same time. I know what it's like to have a body that you can't figure out....medically. It's frustrating and I wish you good luck!!!

Heather
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RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992

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Old 01-06-2014, 10:12 AM #3
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I have suffered from jerks and spasms for a very long time. My neurologist is on the ball with helping me with those. Do you have a neurologist?? I would definitely go and see what he/she would have to say. Good luck!
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Obstructive sleep apnea, Stiff person syndrome, fibromyalgia, anxiety, and MDD (major depressive disorder)

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Old 01-31-2014, 11:36 PM #4
dabearzfan85 dabearzfan85 is offline
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Quote:
Originally Posted by clstewart81 View Post
I have suffered from jerks and spasms for a very long time. My neurologist is on the ball with helping me with those. Do you have a neurologist?? I would definitely go and see what he/she would have to say. Good luck!
Replying b/c I have these EXACT symptoms and am desperate for answers and help. When you said ,"My neurologist is on the ball with helping me with those.", what did your neurologist do/prescribe?

I have an appointment with my GP in 10 days to discuss a refferal to a neurologist about my symptoms. Lastly, what should I expect when I see the neurologist. I know that usually the first appointment is a consultation, but will I need to do an overnight EEG since they only happen at night?

Thanks,
Matt
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Old 01-31-2014, 11:44 PM #5
dabearzfan85 dabearzfan85 is offline
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Quote:
Originally Posted by JFlighttt View Post
Hello everybody, Brian here, first post in the community.

Not sure where to start but I'll start out saying I have changed dramatically over the past couple of years and it's really hard to live with the issues I am facing.

Going back through childhood, grew up as a normal kid, fulfilled life and had a lot of fun. Coming towards the end of high school ( i am 19 now) things started to change and I lost the person who I used to be.

My current symptoms on my everyday basis are:
Depression
Derealization; Depersonalization episodes from time to time, quite often
Anxiety
Anhedonia
Tiredness ALWAYS
Disrodered thinking, thinking in unusual ways and perceiving things very unusually
Distorted/unusual view of reality
Insomnia and OCD (rumination on thoughts and in my mind for hours when trying to fall asleep)

I have been feeling this way for I would say about 2 years. I am living in a very strange and frightening world that anyone can only imagine to see in a nightmare.

What brought me to this community was my research on myoclonic jerks.

I was laying in bed, closed my eyes and tensed up my abdominal area and a giant rush through my head is what I felt as well as the body sense of "falling" and it almost felt like an orgasm through the whole body is how I would describe it. An absolutely severe and intense body sensation that caused me to do very severe myoclonic spasms in my abdominal region for a second or so and then I give up because it is frightening. Whenever I try to relax with my eyes closed I will jerk/spasm uncontrollably mainly in the abdominal area.

I am having a hard time coping with what is going on and why.

My question would be is there any type of testing I can do at a hospital or anywhere to see if I have some type of neurological issue that hasn't became a problem in my life until recently?

I am currently on Lexapro-2 weeks in (10mg) and Trazadone to help me fall asleep.

Thank you for your time and PMs are recommended if any further personal details need to be announced.
First off all, my condolences I have been fighting this for exact thing for a month and a half, and I can not imagine having it for 2 yrs straight. One thing I would suggest is a sleep study, although I will share my experience with mine to give you a full disclousre. -

Hooked up to EEG (monitors the brain activity), but sleep tech told me that I did not have sleep apnea, and that there was nothing wrong even though I am CLEARLY jerking awake. Then talked to a "technologist specialist" that explained that the EEG they did was 'at a lesser frequency, with less channels, and less speed than in a neurological setting.' Very frustrating, as I wanted to know if my sleep problem was neurologically based. In ANY CASE , I have heard that some sleep studies may help to see the cause of the jerks. Also, I have an appointment with them in 10 days, so I will keep you posted with what I find out.

If it isn't too much of a favor to ask, I was hoping if you could check out a youtube video that i made that show my symptoms to see if they are as severe as yours. http://www.youtube.com/watch?v=dQDsJkWR6pE

Lastly, I do not endorse, not advise using medication without consulting a doctor first, but I have read that clonopen helps out with this exact type of problem, but that you can build a resistance and that it loses it effetiveness over time.

In any case, best of luck, I do know exactly the hell that this but as everyone has told me - hang in there everything happens for a reason and keep pushing b/c you'll get the answers your looking for soon
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