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Old 01-17-2014, 06:13 AM #1
Yismymindblank12 Yismymindblank12 is offline
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Join Date: Jan 2014
Location: Ohio
Posts: 11
10 yr Member
Yismymindblank12 Yismymindblank12 is offline
Junior Member
 
Join Date: Jan 2014
Location: Ohio
Posts: 11
10 yr Member
Question Hi, I hope someone has some clarity what I should ask my specialist

I am very distressed and scared, I am practically losing my mind. I am experiencing my symptoms now and that's why I cannot sleep. I have been dealing with these symptoms all my life and I would like someone to help educate me what I am dealing with and I need someone to not to exactly know, but at least give me a better idea what I should ask my specialists on my next visit. I just had a blood test bout a month ago for paraneo type syndromes negative and my MRI is normal. I just had a coma from my fault resulting from these symptoms and accidentally made my progressing worsening symptoms worse from both an two different incidents two weeks apart from drugs. The thing is the drugs didn't cause the symptoms, it just suddenly made them get worse faster. I had this happen after my event of being admitted for a near death experience of encephalitis bacterial kind. They took an MRI and saw my whole brain was affected and was expected to die or more likely to relearn how to walk, talk, eat, go to the bathroom etc., I was very fortunate to make a miraculous recovery in a short amount of time after my lungs collapsed and lost oxygen then into a short coma for 20 minutes. It felt like it took thousands of years for me to wake up literally this happened when I was 15 bout to be 16 in 2009. Now since I just finished a short back story on that, I have to go even further back to help explain this. I was born with very different life, I grew up finding out and especially at 14 years old that my imaginary friends and scary lsd type visual field for what most people would call it.. Sorta like alice in wonderland literally was a hallucination and not real. During that time, I had a long medical history of numbness and hyper sensitivity and still have these symptoms today, just they have gotten very much worse. I feel pain on a much higher threshold on one half of my body and the other numbness or little to nothing. I can easily burn myself on the side that has the numbness and cause bad scarring because I won't feel it till bout a couple seconds more than most people bout 5 at the most. At that time I get usually 2nd to 1st degree burns on accident, I found this out in boy scouts every time we used a sautering iron for making art or something and I grab the very hot tip. I also have been born with random jolts like I get this rush in my head like I am bout to fall asleep and wake up, not like narcolepsy I am fully awake and not tired. Like I either get a white flash of light or like a pulse in my head and I jolt. Almost all the time it's a minor jolt outside when my body moves, but in my head it hurts a lot. I have gotten used to it for many years now. I had one generalized seizure at 10 I believe after playing a videogame with racing fast patterns. The thing is I had these intense pulses more in my dreams and sleep, I call my nightmares are scary themed dreams that result in this pulsating pain only short but very painful once woken up. I also deal with very graphic and unusual hallucinations from dreams and awake. I don't like talking bout it to doctors, because they think it's psych related all the way, yes I have PTSD on a different note that have worsened my night terrors as a child. I will not go into detail because it is more irrelevant to my current and ongoing situation that had these symptoms linked back to then. I have insomnia and very high energy from birth, I never sleep much, I always ran around. The only time I got fatigued badly is when I got no sleep after 3 days with less than 6 hours of sleep in those 3 days. My hallucinations happen regardless no matter what, I wasn't exposed to the stuff I am hallucinating and they are very difficult to describe. I used to have 2 years ago a feeling like my head was dripping water down my head on the frontal area of my brain on the right frontal cortex chunk side. Basically I would feel my head thinking there is water trickling down the side of my head and it's completely dry and sometimes goes down my right cheek and still no water. I called it my brain was leaking symptom, I had tourettes symptoms caused by psych meds once and they have came back recently because of my worsening symptoms. Basically the trickling water symptoms are a example of how vivid my hallucinations are, I had that, people touching me with hands massaging me, seeing things, hearing things vividly, and painful physical hallucinations that involve a feeling of pinching or a feeling like I a being bit by a bunch of fleas. I am very sanitary and take care of myself a lot. I never had bedbugs nor fleas ever. I did illicit drugs for a very short amount of time, only weed not long and had Molly or x with lsd poured on top once. I am not a heavy user, I have no addiction problems, mainly because I have had a huge dosage of morphine for my spinal tap and quit smoking cigarettes, because they didn't do anything for me. My body produces, very powerful numbness, and good feelings alone without the drugs ever since I was born. I can't find it addicting at all it actually hurts more than feels anything good. I get sometimes very nausea symptoms, but never vomited from my weakness on my muscles and stomach. My vision is always blurry now and I have to get glasses again, the only reason I got rid of them before because they caused stroke like symptoms at like 10 or 9 years old. I want to sum this up, I am very concerned my current symptoms are "numbness all over", "weakness in muscles" all over and when the weakness is internally for example my stomach, I get really nauseous, I still "hallucinate all my life everyday" and my life is very terrifying from this and I do my best to keep my head on level, because my former psych doctors I no longer see don't know and generalize me in things they don't understand. Walking coordination standing sitting and lying down is very difficult with sometimes lightheaded dizziness, but I have my internal compass messed up and feel like I am falling on the side of the wall alot as if it was falling down onto that side of the wall. Sometimes short sporatic migraines, not often anymore. Nerve tics, jolts and tremors. Loss of hearing gets very quiet for no reason or very very loud, always a hazy foggy vision. Poor coordination, trouble talking or slur speech and swallowing from the weakness. Amnesia and severe short term memory loss, like after less than a second to five seconds I forget everything bout my whole life and gets recovered soon after. The coma happened recently in last november, like it felt like I had a huge rush of something then went blind and passed out on the ground and my body was found out cold with no pulse, and the pulsating throbbing seizure like pain caused my body to hurt like hell. Visuals were damaged definitely and I was in hypothermia because I was unconscious on concrete driveway in 29 degree weather for 15 minutes laying on the ground out. That's all, but I'd really appreciate anything for feedback on what you might think it is or what I should tell my specialists to look for, because they have made me wait for too long and I am getting much worse where I am more bedridden or immobile now a days. Too many symptoms to put down that are definitely connected, but again please help me explain what I should ask my specialists to look for and help me find the answers I need.
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