Hi, I have had dysautonomia for over 20 years and it is a genetic condition . About a year ago I found out I have EDS which is a connnective tissue disease. On my recent blood tests I was low in D, iron, ferritin and a little anemic along with a positive anti-striational antibodies test which was part of a test for myasthenia gravis but the other tests for MG were negative.
I have seen a neurologist and they did not give me any kind of new diagnosis.
The last few years I have been very dizzy and over the past year I have been lightheaded with vertigo and passing out daily if I try to do much.
I have also lost a lot of strength in my legs and have problems swallowing. I also had a skin biopsy that showed significant degenerative changes of the subcu tissues. At this point I do not even know what kind of doctor to see. I am on IVs weekly and will begin IV iron this week but since i have been getting progressively worse, i do not know what to try next. Any ideas would be appreciated.