[Awm2kids]

I am a 34 year old female. I have not been diagnosed yet with Sjogrens but my doctors are leaning towards that. I have been flipped flopped from neurologist and rheumatologist back and forth since June of 2011. This started with flare ups just when it was cold outside or the wind was blowing.

We'll now it's 95 degrees outside and I feel worse than I ever have. First of June these symptoms started. Right side of my face tingled, my hands tingled, and my feet are cold. They tingle and feel like I'm standing on a bed of needles. My low back hurts and my ankles, knees, and wrist hurts in the joints.

My ears roar and pulsate. My mouth is dry and I drink about 8 to 10 20oz of water a day and at times it feels like that isn't enough. My eyes are extremely dry. I have several drops that I use throughout the day including restasis. My eyes burn and hard to focus.

Now with all that being said....I don't have a diagnosis ....been told it's sic a syndrome, restless leg syndrome, atypical face pain, trigeminal neuralgia, peripheral neuropathy.

It just feels like I am all alone with this. I hate complaining every single day with pain but I hurt and ache all over.

I do have an appointment with John Hopkins at the end of September. I am hoping to find out what's going on....also I have an appointment with Mayo. Not sure if I should keep that appointment or not. Anyways....I'm new to this blog and just scrolling around.