[Tb12]

Hey guys
First time on here for me, I am a 30 year old male from Melbourne Australia...

My symptoms have been ongoing for almost four years now with no diagnosis what so ever and are not stopping only getting worse.. Symptoms are as follows ..

Besides some general fatigue, the odd muscle twitch here and there this is how it all started..

The symptoms came on over 2 days, the first day i did some gardening and noticed my right hand tremoring and very weak so i stopped, the next day i played basketball and that night all hell broke lose on my body and i woke with twitches all over that lead into these symptoms..

symptoms:
1. high quantity of twitches everywhere in my body, you name it, i have twitched (still current)
2. postural tremors felt and seen as well as tremors if holding weight etc on any limb, body part (still current)
3. Proximal muscle pain and feeling of weakness
3. myclonic sleep jerks and now some electric shock type jerks whilst awake that move my body and a limb (still current)
4. GERD, heartburn, scalloped tongue, slurring of some words my th's sometimes turn to f's, tongue biting on occasion whilst eating (still current)..food getting stuck in throat and needing a extra swallow
5. extreme muscle stiffness throughout whole body, feels difficult to hold my posture most days (still current)
6. extreme muscle pain that is sporadic and all over body periodically like sharp pains or deep pain (still current)
7. tingles and ticklish itchiness that drives my crazy through out my whole body (still current)
8. a few cramps that kill or a feeling of a cramp like deep pain through out body parts (still current)
9. extreme clicking of joints with pain involved(still current)

medical history for these symptoms
1. 8 neuro visits:
2. clinical exams always fine and passed, no clinical weakness seen even tho i feel weak and am tremoring and less stable
3. 5 emgs over 2 years, first emg was suggestive of mild chronic denervation, the other 4 were completely normal and clean
4. Dismissed by rheumatologist, said I was clean
5. All endocrine issues are fine besides a low vitamin d
6. Brain MRI is fine
7. Slightly elevated spinal fluid and pseudopapildemia in my eyes


I have consistently bought up my concerns of kennedys disease but due to my CPK blood work being normal neuros won't test me for it ...not even for piece of mind..

I am usually bed ridden and I'm over it, it's so difficult to even to on or plan a future being this sick and not knowing what's going on with me at all..

I'm guessing Lyme disease is not common in australia? I have had massive break outs of red dots everywhere but dr says it's just campbell de Morgan spots ..

Any help would be greatly appreciated.. I hope we can all support each other.