General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


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Old 06-14-2016, 06:52 AM #1
kell.steve@bigpond. kell.steve@bigpond. is offline
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Join Date: Feb 2016
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8 yr Member
kell.steve@bigpond. kell.steve@bigpond. is offline
Junior Member
 
Join Date: Feb 2016
Posts: 20
8 yr Member
Default Frustrated

Hi,

I just wanted to get an idea of what to do. I have 43, overweight and not fit, but an active mother of two, self employed - admin and courier. I am currently undiagnosed. I have been slightly unwell for the past 4-5 years. Symptoms started with lower back pain, loss of menstral cycle, bloating and gas. My ovaries were looked at and given the all clear. I have had mild infection rate, which they have put down as fatty liver for the past 3 years. 2 years ago I started experiencing mild headaches, like a band around my head. I started to worry when I was waking up to it. I have really bad back aches and then 18 months ago I felt like my shoulders were smaller, I was weaker (I have always been strong) I have had blury vision, pain in my right eye that seems to go to my brain. Im confused, cant concerntrate and experience dizzy spells. I then had two scary bouts of coital headaches. MRI found multiple brain lesions. No lesions in spine. Spinal tap had raised white blood cell count. They pretty much told me to expect MS. I have had so many blood tests I have no idea what I have been tested for and what I havent. I started taking vitamin D, calcium, magnesium tablets, later I also started taking Vitamin B12 complex. I was put on prednesone for a couple of months, had repeat MRIs. I have also had a colonoscopy and gastroscopy - all clear (other than a hiatis hernia and some erosion) My neurologist sent me to an MS specialist who said my lesions were not typical MS. That many people have brain lesions and it doesnt mean anything. My neurologist then deemed me stable and has told me to lose weight and she will see me in 12 months. It has been 3-4 months now and my glands have been up forever and wont go down, my joints and muscles ache so much some days I can barely move, I am so fatigued it is so hard to fuction. My vision is getting worse and I am itchy. My bladder control is getting worse and I am getting more constipated. My urine smells funny, and my gums keep swelling and teeth keep clenching. I went back to my gp and he sent me for bloods and scans on my thyroid, apparenly my thyroid is fine, despite me having a goitre. BUT my bloods have come back that my Calcium levels are too high. He has instructed me to stop taking all supplements and to get another blood test in a months time. I have just googled high calcium levels , and considering my thryoid is apparently fine, I am slightly freaked out. Should I be pushing for any other tests? Or should I just wait. I also have sleep apnea.

Thanks for Listening
Kelly
kell.steve@bigpond. is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (06-15-2016)
 

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