General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-20-2018, 03:16 PM #1
Valese72 Valese72 is offline
Junior Member
 
Join Date: Apr 2007
Location: Brooklyn, NY
Posts: 22
15 yr Member
Valese72 Valese72 is offline
Junior Member
 
Join Date: Apr 2007
Location: Brooklyn, NY
Posts: 22
15 yr Member
Default CIDP and CT Scan with Contrast

Hello Everyone!

I have been diagnosed with CIDP for the past 11 years. My neuromuscular symptoms have remained somewhat stable over the years with IVIG therapy, but muscle weakness has progressed slightly since onset. I have always questioned the accuracy of my diagnosis. I responded to IVIG and my neurologist was able to rule out ALS and MD, so he gave me a diagnosis that the insurance company would approve IVIG for (this is just my opinion).

Over the years I have developed other symptoms that are making me think that I might have rheumatoid arthritis. I developed psoriasis, some mild joint pain, episodes of what I think is IBS and 2 episodes of pericarditis. After my last episode of pericarditis, my cardiologist ran blood tests for inflammation and blood clot. The D-Dimer result was slightly elevated so he wants me to go for a CT scan with contrast to rule out blood clot. My chest pain (pericarditis) resolved itself after 3 days. I am thinking D-Dimer results could indicate inflammation as with rheumatoid arthritis.

My question is if anyone knows if the iodine based contrast with a CT scan could exacerbate symptoms with CIDP, or other autoimmune disease. I am very concerned about getting the iodine IV for fear I could have an adverse reaction.

Thank you for any feedback.

Amanda
Valese72 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kiwi33 (01-20-2018)

advertisement
Old 01-20-2018, 04:04 PM #2
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Elevated D-dimer levels usually indicate the presence of a blood clot which is in the process of being broken down though it does not indicate the site(s) of the clot(s). I don't know of any evidence which links it to rheumatoid arthritis.

Iodine contrast can lead to kidney problems though this is rare. It can also lead to thyroid gland problems (either hyperthyroidism or hypothyroidism). I can not find any evidence linking it to auto-immune diseases.
__________________
Knowledge is power.

Last edited by kiwi33; 01-20-2018 at 04:49 PM. Reason: Spelling
kiwi33 is offline   Reply With QuoteReply With Quote
Reply

Tags
blood, cidp, contrast, ivig, symptoms

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Early + bone scan, now - bone scan and have osteoporosis in late RSD. Please help! Heather Rae Reflex Sympathetic Dystrophy (RSD and CRPS) 7 09-24-2015 04:17 PM
PCS advice scan or not to scan? Katie09 Traumatic Brain Injury and Post Concussion Syndrome 1 02-17-2014 11:45 AM
Bad Reaction to CT Scan Contrast Dye PhotoBug50 Myasthenia Gravis 16 07-21-2013 11:59 AM
CT scan without contrast whirlwind123 Myasthenia Gravis 9 11-13-2010 03:53 PM
L4/L5/S1 CT scan, confused about problem, CT scan and advice - help! ebayhtl Spinal Disorders & Back Pain 1 05-15-2008 10:02 AM


All times are GMT -5. The time now is 01:08 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.