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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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12-14-2018, 04:16 PM | #11 | ||
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Congratulations on pregnancy. Looks like you have fairly competent care. My care was an absolute mess. I had similar symptoms as you and even had skin rashes and the gallbladder pain which ended up being referred pain. Anytime I hear something like this first thing I say is make sure it isn't early start of autoimmune encephalitis from ovarian teratoma/dermoid. Most doctors have no clue about that nightmare. Before I got deathly ill I just had annoying one sided neurological symptoms and MS and SFN was suspected too. I only got surgery by chance, and still fighting for proper treatment.
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12-14-2018, 10:06 PM | #12 | ||
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Thank you for your well wishes and reply! How was your blood work when you were diagnosed with that? Mine is relatively normal.
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01-06-2020, 09:31 AM | #13 | ||
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Well.. I'm back lol and still with the same issues, and no answers.
I had my son via c section on July 6 - healthy, HUGE lol I recovered well and had my MRI done in November - MRI of the Brain w/ contrast, MRI Cervical Spine w/ contrast, MRI Angiogram of the Head - ALL CLEAN (Except compression in my C Spine). September 2018, I had an MRCP which showed my back and spine and that was normal also, except for slight scoliosis and a bone island. Tested for Lyme again - that's 3 times now. Negative. B12, normal. Vit D, normal. On paper, I am the poster child of health. Inside, I feel like I'm slowly deteriorating with no real answer as to why. Still dizzy. Still extremely sensitive to light. Still light headed (depersonalization). Now I've developed panic attacks. Still have burning in my legs and arms. Now I've developed sporadic buzzing through my body, almost feels like bursts of electricity. What. The hell. Is going on. |
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