General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


advertisement
Reply
 
Thread Tools Display Modes
Old 12-09-2019, 09:59 PM #1
bsball46 bsball46 is offline
New Member
 
Join Date: Dec 2019
Posts: 2
3 yr Member
bsball46 bsball46 is offline
New Member
 
Join Date: Dec 2019
Posts: 2
3 yr Member
Default Dyspnea twitching and muscle pain

I am a 32y/o male with 10 months of symptoms. This started back in March where I had a lump in throat feeling and swollen tonsils which were removed. I then started waking up with morning headaches and eye floaters. Soon I had widespread muscle pain and twitching which was worse after exertion but sometimes still while inactive. By June I began to have shortness of breath even during the day and right hand pain after using it. My bloodwork which was extensive has all been normal except slightly low Costisol and high HSV1 (Herpes 1 though don't think this can explain my symptoms).

I have had 3 EMG/NCS tests (one by a regular neurologist, one by Mayo Jax, and one by Columbia ALS center in NYC). Despite my symptoms, all of these were totally normal in every muscle tested - the EMGs didnt pick up anything abnormal, not even any fasiculations. The tests were rather extensive across legs/arms/tongue/hip/paraspinals/thoracic area. Spinal tap was also normal.

None of these symptoms have really improved at all over the past few months - I have muscle pain, twitching, and sever shortness of breath. Heart was normal, pulmonary tests were low 80s (not great, but unchanged since June and supine position was only ~5% lower than sitting). My inspiratory and expiratory muscles (MIP/MEP) were ~50-60% of normal. I also had a cardio exercise test which found notable reduced tidal volumes (60% of expected), reduced peak O2 pulse and potential poor oxygen extraction. CK generally have remained normal. Otherwise my tests from endocrinologist and rheumatologist have been unremarkable.

With normal neuro exams, clean EMGs, and my worse problem being respiratory doctors are lost. I was worried about ALS but seems to be unlikely given the tests and rarity of respiratory onset in a 30yr old.

Any advise/thoughts? Thanks
bsball46 is offline   Reply With QuoteReply With Quote

advertisement
Old 12-20-2019, 02:24 AM #2
Tb12 Tb12 is offline
Junior Member
 
Join Date: Sep 2015
Posts: 36
8 yr Member
Tb12 Tb12 is offline
Junior Member
 
Join Date: Sep 2015
Posts: 36
8 yr Member
Default

Hey there,

Are you still on here mate? Would like to connect.
Tb12 is offline   Reply With QuoteReply With Quote
Old 12-25-2019, 11:33 PM #3
bsball46 bsball46 is offline
New Member
 
Join Date: Dec 2019
Posts: 2
3 yr Member
bsball46 bsball46 is offline
New Member
 
Join Date: Dec 2019
Posts: 2
3 yr Member
Default

Still here! And still no answers unfortunately
bsball46 is offline   Reply With QuoteReply With Quote
Old 05-21-2020, 08:45 PM #4
duncansheik duncansheik is offline
Junior Member
 
Join Date: Nov 2019
Location: Kentucky
Posts: 6
3 yr Member
duncansheik duncansheik is offline
Junior Member
 
Join Date: Nov 2019
Location: Kentucky
Posts: 6
3 yr Member
Default

I find your story fascinating as while mine not exactly the same had similar component of a herpes family virus precursor.. I had Shingles in July started with lesions In left groin region and then it butt crack leading to bilateral neuropathy in my calves. Resolved after treatment then four weeks later started develop neuropathy in the right hand that progressed to a full body neuropathy followed by thethe fasciculations everywhere. I had two negative EMGs and NCS by neuromuscular specialist’s. Nothing showed up extensive lab work. I’m convinced it’s the immune response to the virus.
duncansheik is offline   Reply With QuoteReply With Quote
Reply

Tags
muscle, normal, pain, symptoms, tests

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Concussion causing widespread joint/muscle pain, twitching halfstep44 General Health Conditions & Rare Disorders 0 08-02-2012 11:10 PM
Muscle twitching Sallysblooms Peripheral Neuropathy 9 06-29-2012 11:07 PM
Muscle Twitching or Fasciculation kyoun1e Thoracic Outlet Syndrome 6 12-03-2011 06:08 PM
Muscle Twitching rezmommy Myasthenia Gravis 9 07-26-2010 06:23 PM
Muscle twitching??? BJ Bipolar Disorder 4 12-09-2006 09:23 AM


All times are GMT -5. The time now is 07:03 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.