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Old 04-23-2021, 10:29 AM #11
SeanQHX1 SeanQHX1 is offline
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SeanQHX1 SeanQHX1 is offline
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Hi Lara again,

Nope I'm getting any better I'm afraid, and feel like I have deteriorated slighty since my last post on here, mainly with the cognitive issues, anhedonia etc.

My new GP couldn't give me any further help unfortunately, other than what had already been done. The only thing now is to wait on word about the neuroimmunologist.

I've not had any word yet about at appointment with this doctor and doubt that I will for quite a while. It's taken around 6-8 months at a time on the NHS waiting list for any referrals I've had and this one will probably take a year if I leave the NHS to their own devices. If I don't hear back soon, I'll see about consulting the neuro privately.

The IH symptoms I get, those head pains I mentioned, have calmed down to their regular state for now, but will come back in due time.

Anyway, thanks for your concerns for me, lets hope soon I've have some good news to tell.
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Old 04-23-2021, 02:08 PM #12
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Lara Lara is offline
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Lara Lara is offline
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Sean, I'm sorry you're not doing much better but I think it's good that the pains in you head have calmed down a little bit.

I think many are feeling a bit flat with all that's happened in the past year.

It's a shame it takes so long for appointments. It can be like that here too depending on which area you live.

Appointments are usually triaged, so if your referring doctor originally had you in a tier that wasn't "urgent" for example, then that can set you back many, many months.

Well, good to hear back although I'm sorry that there has been very little improvement.

Take care there.
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