[houghchrst]

Hi all, can't believe it's been over ten years since I have been here lol. I am reaching out because I am desperate. I recently, stupidly quit taking Latuda cold turkey at the very end of July without telling my psych. I was tired of living in a numb, depressed, apathetic, dark cloud. I know better, titrating down did not even cross my mind. Anyway, about 6-8 weeks later I begin noticing a lot of movement of my tongue pressing and rubbing on my teeth. Eventually reaching a point where my tongue is being rubbed almost raw, burns in some areas, and is sore in others. If I concentrate I can keep it still but I find it is worse when I am doing something. Does not happen during sleep which my psych told me was normal. I am to see a neuro on the 17th to see what can be done. I am sure they will write me a prescription for yet something else. Information I am finding is saying that for this type it clears up 90% of the time. What I am interested in is if anyone has had this? Did it go away? How long did it take? Did you have to take medications? Please, anyone.

[Chemar]

Hi
So sorry you are going through this.
When a friend was suffering TD they mentioned some supplements that had helped. I don't remember them all, but did find this - Tardive Dyskinesia (Holistic) | PeaceHealth with more details here - Tardive Dyskinesia (Holistic) | PeaceHealth

I know often doctors just give another drug to combat the effects of the first - but sometimes a more natural way can be helpful

[houghchrst]

Thank you so much. The vitamin E is very doable and I plan to get started right away. I will call my psych and let him know, he is fortunately also an MD. Docs will probably want blood work before I start to see what my levels are.

Lots of great info, again thank you.