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Old 08-30-2006, 11:11 AM #1
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Default Business as usual , Help needed please

I don't know which forum on here to post in...just received the info. that my Thoracic Myelopathy is causing a spino-thalamic central dysfunction, (all gobbeldy gook to me, ) and there is no pain treatment..
Feeling very fragile and would like pointing to the correct forum please..
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Old 08-30-2006, 12:46 PM #2
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(((((stumps)))))

maybe chronic pain? or spinal disorders?

i'm sure no one would complain if you posted on both for help.
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Old 08-30-2006, 02:53 PM #3
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Stumps,

I agree with Curious' ideas.

Within the BT forums, there were a number of people who posted to both - the CP and SD forums - and that's perfectly okay to do .

Too, you could also start a new thread in this forum since it's also for conditions that aren't listed as a Forum.
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Old 08-30-2006, 03:18 PM #4
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Default Thank You Curious and Bobbi

I shall do those posts tomorrow on CP and SD, rather late here now, time zones on BT can be a headache at times.
Is it only me that struggles to understand what some of the words in reports that Doctors write actually mean and finds they can't handle the situation, a case of 'oh no what else can they throw at me now'.
Only got the report at the weekend so thank goodness this site is here...
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Old 08-30-2006, 05:27 PM #5
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don't worry about what time you post stumps...i have super bad insomnia...never know when i'll be here. same with many others.
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Old 08-30-2006, 06:10 PM #6
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Stumps,

In addition to posting at the CP and SD forums, maybe this will help some too:

http://forums.braintalk2.org/showpos...25&postcount=4

Since reports tend to be written in medical jargon, I've stopped asking for reports of when my doctors receive them. For me, it's less frustrating to have them go over what the reports mean in terms that I can understand . So, it's not only that you can't understand what the heck some terms mean, I know I go through the same thing . Others do too. Bummer, huh .
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Old 08-31-2006, 08:41 AM #7
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Default Thank You again both

I like that useful links very much indeed..
For me as a person I am finding this slimmed down version of BT much easier to use, more helpful and friendlier, possibly chattier among the different groups of posters, in fact don't feel so much of fool sitting here having a cry and asking for help from people who I have never met.
Medical jargon is awful, it is only this year that it has been made law that we all receive copies of letters written about us from Consultants to our GP's. The change was long over-due but for now it is getting used to learning how to read these things correctly for me that is the problem, but very useful as at least now I have a record of the Consultation as otherwise once home I forget all....
Hopefully as well now I will be able to learn and then ask 'relevant' 'focused' questions at my next appointment.
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Old 08-31-2006, 12:36 PM #8
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you're welcome stumps!

i agree with ya about it being friendlier. heck i pop in all over the place and don't feel like i'm barging in.
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Old 08-31-2006, 12:57 PM #9
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(((((((stumps)))))))
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"...
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Old 09-01-2006, 12:58 PM #10
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Default Glenntaj

once mentioned this site: http://www.centralpain.org/

Don't know much about the issue, though; there used to be a Central Pain board at BT1.
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