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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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08-30-2006, 06:29 PM | #1 | |||
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Senior Member
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Wheelin Rev,
Would it be too intrusive to ask you what MELAS is or what the acronym means? Too, I just wanted to say, Hi! See, we are reading your posts . |
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08-30-2006, 06:53 PM | #2 | |||
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Junior Member
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Quote:
Nope... Take a peek here: http://www.datm.org/parsonage/journal/melas_journal.htm I post for the whole world to know. LOL Dave
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08-31-2006, 12:27 AM | #3 | |||
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Senior Member
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Thank you, W. Rev... going to visit and read .
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08-31-2006, 06:31 AM | #4 | |||
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Hi Rev!!
I'm Alicia, mom to four kids and myself, with mito. We live in florida, and like you, am very involved with UMDF. we are affected by complex 2 and 3, with a secondary gluteric acidemia! Travel yearly( twice a year) to a specialty center for good care! |
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08-31-2006, 09:01 AM | #5 | |||
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Junior Member
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Hi Alicia,
Nice to meet you! Were you at Atlanta this year? Are #56 and #65 yours? A forum friend of mine trails around behind Ricky Carmichael. Dave
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08-31-2006, 09:05 AM | #6 | |||
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TeeHee! R.C rocks, as does Travis! we spent a day with Travis this April, and my life will never be the same!!!!!
Yeppers, #56 and #65 are both me, mine and ours! Each placing in the top 5 for the series finale! Needless to say, I am uber proud. I must add though...many a prayer, and time spent with the track chaplain saw them, as well as I through! Yes, I was in Atlanta! were you? I was actually able to attend....ALONE! I found so much to be helpful there...even found a physician here in Florida to help guide treatment! Nice to see some other mitofolks around town!
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"... . |
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08-31-2006, 08:13 PM | #7 | |||
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Junior Member
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We were not able to attend. We'll be there if the conference ever comes to the Baltimore - Washington corridor. LOL Dave
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