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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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#1 | ||
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Junior Member
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Hi Everyone!
![]() I really appreciate all your help. Blessings, TinaInGp |
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#2 | |||
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Co-Administrator
Community Support Team
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Has she had any other tests- like a full blood work panel, MRI or CT scans?
Do you have a primary dr to oversee things and refer her to other specialists? Maybe a neurologist should be the next step.
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Search NT - . |
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#3 | ||
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Junior Member
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Blessings, Tina |
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#4 | |||
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Senior Member
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Can you explain the stuttering a bit more? For example, is she getting stuck pronouncing a word, repeating the same word, breaking words up or troubles with word gathering (hopefully that made sense).
I have some Neurological complications (using that term to save time typing it all up), and I have the problems you listed excluding true stuttering. I do, however, repeat the same word twice or sometimes 'fumble' a word; like saying, I'm going to the st-store' or I will say, I'm going to to the store' or sometimes I forget an entire word, and so on. The jerks I have are called Myoclonic Jerks, and mine were diagnosed as Myoclonic Seizures during the day, and at the night they are more severe (typically before bed or while falling asleep). Here is a link to Myoclonic Seizures and another for Myoclonic Jerks. I also have Tachycardia, which never brings any abnormalities on an Echocardiogram. I had this recorded via Holter Monitor as well as during a VEEG where my heart rate will go from the 80's to the 150's and higher. This happens even while resting. They are yet to find a diagnosis, but are now considering some beta blockers or something. It's been harmless so far, but it is annoying and I'm sure if you ask her if she's aware of her heartbeat she will say 'yes' and probably agree being aware of it is very aggravating. I've found Inositol to be helpful but I'd suggest to speak with a doctor before trying anything even if it is over-the-counter (which Inositol is). Eliminating caffeine yielded no results for my heart palpitations, by the way. I also have hand tremors which I have found nothing helps them, I've had these for a long time (since I was a kid) and my Neurologist says this along with my jerks are related to my Epilepsy. You're more than welcome to come over to the Epilepsy Forum for more information, I'm sure they'd be of great assistance even if it's not Epilepsy-related. Most of us are very familiar with the Myoclonic jerks (and can give good Neurologist tips). Make sure she gets an EEG and a MRI/MRA of her brain, too! Best wishes to you. -Ellie
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#5 | |||
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Senior Member
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Oh, also. I have lots more to say but I am out of town and wont be back until Wednesday evening, so it's rough to get online very often here. Thursday I will post again (by Thursday, I mean) and hopefully be more helpful. Hang in there and feel free to ask whatever you like, I'll get back on her as soon as I can!
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#6 | |||
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Wisest Elder Ever
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When these events happen. Is it after eating? After eating certain foods?
After bending or exercising the abdomen? things like that. After emotionally upsetting situations? Medically thyroid function and other endocrine issues (pheochromacytoma) come to mind. Excess thyroid function, Grave's disease or hyperthyroidism is a major cause of tachycardia. But people get weird reactions to MSG in foods, have food intolerances to dairy and wheat/gluten, etc. A pheochromacytoma is a growth on the adrenal glands. Certain muscular movements can compress one and release excess adrenaline which will then give the racing heart/increased blood pressure etc. This is an inherited condition for the most part.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#7 | |||
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Magnate
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Since she has had a full workup I am wondering if she is having panic or anxiety attacks.
I have both and I stutter at times. My body jerks at times from the nervousness from the attacks. My heart races with them also. This is just a thought but I would watch what kind of situations she is in when she has these symptoms. If she is in uncomfortable situations then it could be panic and/or anxiety attacks. Ada |
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#8 | ||
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Junior Member
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I have to tell you that I am so happy that you wrote. Yes, those are the jerks she has. The jerks start and then the racing heart (yes, she can tell when it races and does bug her ![]() I am going to take a look at the epilepsy link... thanks so much for all your help. I can tell getting on this site is going to be tremendously helpful. Blessings, Tina |
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#9 | ||
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Junior Member
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I know she must be under a lot of stress, but why are they not happening more often? She is looking for a job right now. She is not stressed when they happen per se... there seems to be no OBVIOUS correlation of why they are happening. She has had them while driving, working, eating, etc. Thanks so much for your help. I can't wait to post an update once she gets to see the neurologist. Blessings, Tina |
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#10 | ||
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Junior Member
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I can't imagine that stress does not have at least a little bit to do with these attacks. She seems to be doing good though... but I guess it could be internalized. I forgot to say that she is taking Prozac right now for anxiety. But she is not taking it 2x a day like she is supposed. So she is taking it 20mg in the am... the episodes have happened in the day and in the night...but I think they are more at night time. I am going to have her keep a journal. Blessings, Tina |
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Thread | Forum | |||
White spots on Brain & Tremor's, Seizure's & Heart Racing | Community & Forum Feedback | |||
Myoclonic Jerks | Epilepsy | |||
White spots on Brain & Tremor's, Seizure's & Heart Racing | General Health Conditions & Rare Disorders |