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-   -   New to B12 Diagnoses (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/44882-b12-diagnoses.html)

Paul Golding 05-20-2008 09:52 PM

Message Deleted

mountainpass 05-21-2008 08:07 AM

Sure, post what you need. Again, sorry if I mucked it up. D

added by curious...mountainpass' post. :)

I've been dx/ with B12 def., my MMA was high at 590, top of range is 353, and that was after 5 weeks of 1000 mcg of jarrows sublingual lozenges. Anyhow, felt like crap during that time. I tried taking 2 lozenges daily, made me sick with more neuropathy, and made my headache worse. I tried 5 lozenges, made the same side effects, but i went right to sleep. I couldn't keep my eyes open. I tried a Cyano injection made me sick with headaches. I tried hydroxo inj. for a week daily, and on day 7 ended up in the ER because of racing heart and high blood pressure (I don't have a BP problem). They told me to stop the B12 shots. Anyhow, I have reduced my shots to every other day, but it's like a rollercoaster during those 2 days. I also take 1000 mcg of sublinguall methyl b12 and 3 mcg of AD-b12. I keep reading how methy is better. I don't know whether to continue the hydroxo shots, and try the methyl shots, and I would like to increase my mb12 sublinguals, but it makes my b12 symptoms 100 times worse where I can't function (I have 2 kids to take care of). Any thoughts, suggestions or advice? Thanks.

mountainpass 05-23-2008 08:09 AM

I'm happy to say I've been making some progress. My husband was giving me shots, and it seemed like they gave me too much all at one time, and it made me really nervous, and then I kind of felt better, and then I crashed, so I'm trying the tablets. I took 7 of the 1000 mcg's of Jarrows, yesterday, I took 10, and then by evening felt like I was dipping, so I took one more, a total of 11 yesterday. It is really helping. I'm feeling better doing the tablets. I am very happy. Does anyone here take the lozenges, and how much do you guys take? I'm going to keep taking them, and add as needed. Thanks all. D

mountainpass 06-23-2008 05:32 PM

Quote:

Originally Posted by mountainpass (Post 285263)
I'm happy to say I've been making some progress. My husband was giving me shots, and it seemed like they gave me too much all at one time, and it made me really nervous, and then I kind of felt better, and then I crashed, so I'm trying the tablets. I took 7 of the 1000 mcg's of Jarrows, yesterday, I took 10, and then by evening felt like I was dipping, so I took one more, a total of 11 yesterday. It is really helping. I'm feeling better doing the tablets. I am very happy. Does anyone here take the lozenges, and how much do you guys take? I'm going to keep taking them, and add as needed. Thanks all. D

Well, just an update. I saw my doc today, my serum is 200, and my MMA is 76, both in the normal range. I'm supposed to be healed, but I stil l have all of my symptoms. I started taking 1mg by injection, and I have worked up to3 mgs' daily, and he has cut me back to 1mg daily. We'll see what happens. Still don't feel well. D

cvanvranken 06-26-2008 07:05 PM

Vit D, Vit A, Iron, Zinc and associated nutrients
 
The symptoms you describe as well as the lab test values parallel the symptoms I had towards the end of college. When you say white spots I assume what you really mean is white raised up hair follicles and particularly dry skin, the skin is dry and somewhat flakely and when you scratch it - it flakes and turns white, also the hair may or may not be growing at that particular spot. The hair and hair follicle issues may not be as noticeable for a female though... In myself I had insomnia, sensitivity to heat (i couldn't take a hot shower without a massive headache and increased insomnia), sensitivity to light and sound, twitching all over my body and eventual tingling in my feet, completely fogged mentally and more than the insomnia could account for, painful walking on my tingling feet and dry white patches of skin just above my ankles, at one point I even felt like my headache had extended to my spine. The whole thing was physical, emotional and mental torture of the most nasty kind.

In the end it turned out to be multiple deficiencies stemming from a primary vitamin D deficiency.

One needs vitamin D to stop the cycle and make permanent improvement.
magnesium (mag controls the sensitivity to light and sound as well as allowing for potassium absorption)
calcium will start going up when you get vitamin D - i wouldn't take much calcium until you get the magnesium levels up... since the calcium changes will give you a headache. Low calcium also causes sensitivity to heat (this is difficult to notice until you stop taking hot showers and find you feel alot better). Calcium and Sodium control temperature regulation in the body.

Vitamin D works together with Vitamin A, Zinc and Iron and Vit E to control calcium metabolism - there are other players involved of course but these are the primary ones that helped me. Vitamin A toxicity is lowered by Zinc and Calcium, while zinc toxicity is lowered by iron. Iron toxicity is lowered by calcium and zinc. Vit E reduces toxicity of Iron and Vit A. The multiplicity of deficiencies is caused by the fact that without calcium\vit D some of the other vitamins become disregulated to the point of toxicity and so they must be excreted until the primary deficiency can be resolved and then slowly built back up together. Vit A, Zinc, and Iron will help with dry skin and the 'white patches' - my hair at those spots started to regrow when i took the zinc\iron.

Vitamin A toxicity for instance is caused because it induces changes in the cell membrane that cause it to take in osmolytes, the cells becomes overly hypertonic relative to its environment and it swells up like a ballon if it is then introduced to a hypotonic environment it is extra susceptible to bursting. Zinc and calcium prevent this effect, the zinc and calcium allow the osmolyte taurine to be pumped in and out of the cell as needed. Without vit D one gets to the point of insufficient calcium, which causes higher concentrations of iron and vit A to became toxic so some of it is excreted and\or not as readily absorbed which causes zinc to be toxic and get removed as well. It's a nasty chain effect causing you to become deficient in many things to varying degrees. Ferritin and b12 for instance because they relate to the iron.

When this happened to me I was studying Genetics at Fredonia State, and so intending to be a research biologist by training - I've done tons of research on this at I have alot of references and if someone wants more information I can provide.

cvanvranken 06-26-2008 07:13 PM

Vit A, D, Iron, and Zinc
 
The symptoms you describe as well as the lab test values parallel the symptoms I had towards the end of college. When you say white spots I assume what you really mean is white raised up hair follicles and particularly dry skin, the skin is dry and somewhat flakely and when you scratch it - it flakes and turns white, also the hair may or may not be growing at that particular spot. The hair and hair follicle issues may not be as noticeable for a female though... In myself I had insomnia, sensitivity to heat (i couldn't take a hot shower without a massive headache and increased insomnia), sensitivity to light and sound, twitching all over my body and eventual tingling in my feet, completely fogged mentally and more than the insomnia could account for, painful walking on my tingling feet and dry white patches of skin just above my ankles, at one point I even felt like my headache had extended to my spine. The whole thing was physical, emotional and mental torture of the most nasty kind.

In the end it turned out to be multiple deficiencies stemming from a primary vitamin D deficiency.

One needs vitamin D to stop the cycle and make permanent improvement.
magnesium (mag controls the sensitivity to light and sound as well as allowing for potassium absorption)
calcium will start going up when you get vitamin D - i wouldn't take much calcium until you get the magnesium levels up... since the calcium changes will give you a headache. Low calcium also causes sensitivity to heat (this is difficult to notice until you stop taking hot showers and find you feel alot better). Calcium and Sodium control temperature regulation in the body.

Vitamin D works together with Vitamin A, Zinc and Iron and Vit E to control calcium metabolism - there are other players involved of course but these are the primary ones that helped me. Vitamin A toxicity is lowered by Zinc and Calcium, while zinc toxicity is lowered by iron. Iron toxicity is lowered by calcium and zinc. Vit E reduces toxicity of Iron and Vit A. The multiplicity of deficiencies is caused by the fact that without calcium\vit D some of the other vitamins become disregulated to the point of toxicity and so they must be excreted until the primary deficiency can be resolved and then slowly built back up together. Vit A, Zinc, and Iron will help with dry skin and the 'white patches' - my hair at those spots started to regrow when i took the zinc\iron.

Vitamin A toxicity for instance is caused because it induces changes in the cell membrane that cause it to take in osmolytes, become hypertonic relative to its environment and swell up like a ballon if it is then introduced to a more hypotonic environment it is suceptible to bursting. Zinc combined with taurine and calcium prevent this effect the zinc and calium allow the osmolyte taurine to be pumped in and out of the cell as needed. Without vit D one gets to the point of insufficient calcium, which causes higher concentrations of iron and vit A to became toxic so some of it is excreted which causes zinc to be toxic and get removed. It's a nasty chain effect causing you to become deficient in many things to varying degrees. Ferritin and b12 for instance because they relate to the iron.

When this happened to me I was studying Genetics at Fredonia State, and so intending to be a research biologist by training - I've done tons of research on this at . I have alot of references and if someone wants more information I can provide.

clouds z 07-06-2008 10:29 PM

hello

i had shingles and still have phn from shingles after a year and more

had antibiotics and i wonder what that did and how long it will last

they say eat yogurt

i took a 2000 mcg b12 pill saturday and it was weird or something made me messed up

if in usa the store rite aid sells 100 mcg b12 and i guess just try one to whatever the doctor says is safe

this b12 i feel is helping me sleep

i wonder if this will last and if ill get over this phn

phn is really sick at least if it was in eye area maybe for everyone
and there is no info on it or very little


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