I'll make this short!

I have an arachnoid cyst that is 3.8 cm (since 2004, will find out in a few days if it is bigger). The hospital which does my MRI's state there has been no change since it was discovered. My surgeons don't agree and the last one states that he feels it has grown. It has flattened the top of my cerebellum and my tonsils (stem of my brain) is now smashed into my spine. I also had inflammation of the ventricles.

I have been going to surgeons since 2000 and the sad part is I have to test them to make sure they know what they are talking about! Some have more comfort with this than others. The thing is, I have not been comfortable with those I have seen. They all seem to contradict eachother or something may have been stated that I have researched and confirmed NOT to be true!

Looking for advice and names of neurosurgeons that would be good. I live in CT and will see one next week in MA. I also saw information on Dr. Jho and I contacted him a few years ago. He advised me to send him my scans but I never did.

Any recommendations you can make will be appreciated. Thank you and I hope you find what you are also researching. If you are living with something as well, remember to never lose faith!!! Always keep your head up! Take care!