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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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10-12-2008, 08:29 AM | #1 | ||
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Newly Joined
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Hi
I wasnt sure where to post this article. My Dad had a surgery for Pituitary Adenoma. After surgery - peripheral vision is zero. He vision is quite blurred and the doctors have said the nerves are quite damaged. Is there any successful treatment that can regenerate these nerves ? Or any other alternative ? Regards |
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10-13-2008, 03:06 PM | #2 | |||
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I am so sorry to hear about your father.
There are a lot of factors here - the largest being the experience of the surgeon - was he super duper experienced in the type of tumor your father had? Different tumors have different characteristics - some being harder to remove than others. The optic nerves and the carotid arteries are right there, so the risk of error and what can happen is catastrophic so it pays to ask a lot of questions up front. You did not indicate what type he had or what size, so it is hard to say if it is a side effect or if it would be temporary from the surgery. That can happen but not often. You need a good neuro-opthomologist. I had pituitary surgery a few years ago and traveled 3000 miles to find the best I could. I had two pituitary tumors. The center of excellence near me looked at my films and said I had none. Hah. I had Cushing's (which are typically soft and gelatanious tumors) and a prolactinoma (I think that one is pretty straightforward to get out). Did you look at any of the pituitary sites and investigate surgeons before you chose?
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis? |
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10-16-2008, 10:35 AM | #3 | ||
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I'm sorry to hear about you father and I can empathize with getting through surgery only to have a whole new set of concerns to worry about. My husband had his tumor taken out in June and his pituitary was destroyed in the process. Now he has nausea, headaches, vomiting and overwhelming fatigue most of the time. Does anyone know of anything on this subject? he is on full hormone replacement and still has all these troubles and he is at the Mayo clinic so I don't think we can find a "better" place...
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10-17-2008, 10:14 AM | #4 | |||
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Wisest Elder Ever
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to another member about nutrients that help nerves heal.
While there is no guarantee they will work for damage due to surgery, they may help, and are better than "nothing". http://neurotalk.psychcentral.com/thread56669.html Optic neuritis is treated with B12. So if this surgical side effect is a form of neuritis, high dose B12 may work. You can request blood tests before starting, and if the level of B12 is less than 500 (American doctors often believe the old levels of 200 are normal and they are not), then taking it anyway is good insurance. The recommendations today are for all people over 50 to take a B12 supplement anyway!
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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10-18-2008, 06:54 AM | #5 | |||
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JV - If your father has nausea and vomiting, sounds like adrenals issues are not being addressed properly. I have no adrenals now - I understand this. It is difficult - too little and you die, too much and well, you destroy your body slowly over time too.
Sad to say, I went to Mayo first and was told to ignore my tumor (which turned out to be tumorS) and while I know they are rated in the magazines to be great in endocrinologly, I have yet to find out which type since everything is wrong with me and they found nothing but put me on thyroid meds. I know of others who have had similar experiences. It is not a place that is recommended actually. You may want to look at taking him elsewhere - to a university with a pituitary center. Granted, that is still iffy, I was tossed all over but as your dad had surgery already, you should be able to get help now. You may aslo want to see what their levels of D, ferratin and all the hormones are - all should be checked. What did his pathology say?
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis? |
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