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Old 10-27-2008, 10:24 AM #1
lujazz lujazz is offline
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Join Date: Oct 2008
Location: New York
Posts: 5
15 yr Member
lujazz lujazz is offline
New Member
 
Join Date: Oct 2008
Location: New York
Posts: 5
15 yr Member
Attention Is it fibromyalgia???

Hello. I will try not to make this too lengthy. (this new med has me not sleeping, got 3hours in last nite)

About 4 years ago my facial lips would blow up and get numb, hands, feet and vaginal lips would go numb too. I would get quarter to nickel size welts down my spine, break out in hives, itch, pulling pain in my hip like something was trying to rip it off, and once in awhile get a sharp shooting pain straight through me. Back then I was'nt a complainer and just dealt with it. Till that shooting pain got so bad and dropped me. Started to have trouble going 'P'. After plenty of antibiotics, doctors, and tests they said I had interstitial cystitis (IC). Doc told me,"Like fertilizer..10-12-10 your leaking out the -12- phorspous".
Anyway, my insurance dropped me and 3-cocktail bomb treatments later and a bill for $3800, I was all better. (HA)

This last May I started feeling like crap. Working 12-14 hours a day, tired all the time, going numb (just about EVERYEHERE!), neck and spine pain, stiffness in ankles, feet aching,back, and sereve lower abominal pains.
The next morning I got my monthly and started getting "labor pains"!!!(again..it useto happen 4 years ago too) Thats the only way to describe it. (I have a 16 year old child). First I don't know if I have to throw-up or go #2. Then the pain get worst like contractions! I roll around on my bed in the fetal position breathing, then when it eases up, I think I have to throw-up and go to the bathroom again. Then contractions again! It'll usually go on for about 3-4 hours. Last time it happen, my husband came home towards the end of it (when I can't walk, legs like jelly) and took me to the ER. Bloodwork and CT tests good, and sent me home w/pain meds!!!!!!! Are'nt hospitals freaking great!!! (they tick me off!!!...BAD!)

Since May they checked for endometious. Claims I'm healthily down there. But I have'nt been able to get pregnant since I was 20, (the idiot did'nt know how to put a condom on and it broke! Lovely uh?) But I did get a beautiful daughter out of it!!
I have had MRIs on my brain, lumbar and pelvis. Show'd cysts on ovaries and massive amount of fluid on balsa sag (uterus). Says unremarkable mri of brain, mild chronic pan sinusitis.
Doc says bloodwork is fine. But I got copies and my RA rheumatoid factor results say positive flagged high. CBC bloodwork my gran% and MCH is flagged high and my lymph% and RDW is flagged low.

Anyways, my spine and ankles kill me the worst!!!!!!!! The meds seem to have taken the crawling feeling out of the back of my head, and it does'nt feel like a fly or something is crawling around my arm and legs. If I drive or sit to long my butt, private and thighs still go numb (fun uh?).
My spine and neck kill me!!!! These new meds make me feel 'high'. I have only been on them for about 4-5 days and I can't take it anymore!!! It's like a never-ending high and my spine feels like a stick or a big hose. It feels like a can grip it! If I could I'd rip it the hell out and be done with it!!!
The doctor claim I have fibromyalgia....I've been on sites for it and the pressure points on me don't add up. I pain in different spots (some are the same).
I have to get back to work! I'm going under fast!!! I work at a dairy in the warehouse. Its all heavy lifting, unloading trucks, keeping the floor running with supplies and putting up orders for the next day. Its a very fast pace. I tried going back about a month ago and could'nt do it! I lasted a week in a half though! My feet felt like they were gone and I was walking an two nubs. My spine pain was so bad, I was running around 'stoned' from taking too many meds to try and get relief...it did'nt help.
Anyone out there with similar symptoms and know what they have? I have to find a new doctor or something! I can't take it anymore.
Nice talking to you, or rather THANKS for listening.
LuJazz
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