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Old 01-05-2009, 04:09 AM #1
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NeuroCrusader NeuroCrusader is offline
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Smile Has anyone heard of this rare disease?

Hello viewer,

About 25 years ago I was diagnosed with Epilepsy. Seizures out of control I was taken to Vanderbilt in Nashville TN about 10 years ago. At that time I was correctly diagnosed with X-linked Familial Bi-Lateral Periventricular Nodular Heterotopia. I lightly call it my "rocks in the head" disease. When faced with a chronic life long disease without a cure, I have to develop a sense of humor about the disease.

I recently found this group while searching for ways to nourish my brain without promoting tumor growth, any advice?

I'd also like to develop friendships with individuals "in the same boat"as I.

I'll be checking in from time to time

Peace to all,

NeuroCrusader
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Old 01-09-2009, 05:50 PM #2
Lara Lara is offline
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Hi Neurocrusader!
Welcome to Neurotalk.

I'm awfully sorry that I can't help you at all with your condition but hopefully others will be able to do that.

I just didn't want to see your 1st message go totally unanswered.
There is an Epilepsy Forum here however. Just need to click on the link below.

Epilepsy Forum

You wrote that you were searching for ways to nourish your brain ... This forum below might be helpful for you as well.

Vitamins, Nutrients, Herbs and Supplements

I also just wanted to say a big HAPPY BIRTHDAY to you.
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