Long story short. I started noticing a lump growing on the forward part of my head about 18 mos. ago. Like most men, I didn't think much of it till I started getting the good old headaches because of it. I went to my primary care physician who ordered an MRI. The results showed three lesions in my skull. I had the largest lesion exscised and biopsied in Sept. The lesion biopsied as hemangioma. I was relieved at the time but my headaches did not cease. I did a little research and found out that it was highly unlikely that the lesion could be a hemangioma due to the fact that they are congenital and do not manifest themselves in a man my age. This lesion just showed up when I was 44. When I look at the MRI, I can see that the other two lesions look nothing like the large one under contrast. I went to see a neurologist that my neurosurgeon referred me to because of the continuing headaches. All he wants to do is mask the pain with medication and PT on my neck. He thinks that this is all stress related and has nothing to do with the tumors. When I told him about the improbability of the hemangioma diagnosis, he got a puzzled look on his face and replied that he did not know that was the case with a true hemangioma. He and my neurosurgeon want to MRI again in Jan. to see if there is any change in the two exsisting tumors.
In the meantime the neurologist wants to try Depakote as the naproxen he had me on did no good. They both claim that the lesions aren't the cause of my headaches but I really wonder. The pain is getting progresively worse and is keeping me up at night. I am also having abdominal pain and am noticing the vision in my right eye is being affected somewhat. I was never sick or spent a day in the hospital prior to this and am not a complainer but I guess my question would be, how much more time do I give these guys a chance to figure out what is going on or do I take my concerns elsewhere. I believe they are good doctors, but I think my case is rare enough that they aren't quite sure as to what is happening. I just don't want to wait untill something comes along that might not be able to be corrected.

Thanks for any information and it is a relief just to find this site.
Bob