General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


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Old 12-06-2006, 01:28 AM #1
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Arrow Useful Information and Websites

Welcome to the General Health Conditions and Rare Disorders forum here at NeuroTalk.

Please feel free to use this thread to add useful information and to share links to useful websites.
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Old 02-01-2007, 12:48 PM #2
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Default Rare Conditions list- links

Genetic and Rare Diseases Information Center - Office of Rare Diseases
This list includes rare diseases and conditions for which information ... Department of Health & Human Services · National Institutes of Health · USA.gov.
http://www.rarediseases.org/

Genetic/Rare Conditions National /International Groups
national and international genetic and rare conditions support groups, ... Health On the Net (HONSelect) List of Rare Diseases [English, français, deutsch, ...
www.kumc.edu/gec/support/grouporg.html - 48k - Cached - Similar pages

Google Directory - Health > Conditions and Diseases > Genetic ...
Health > Conditions and Diseases > Rare Disorders (259) ... Lay advocacy groups, support groups, information on genetic conditions and birth defects for ...
http://www.google.com/Top/Health/Con...tic_Disorders/ - 37k - Cached - Similar pages

Google Directory - Health > Conditions and Diseases > Rare ...
Related Categories: Health > Conditions and Diseases > Chronic Illness (71) ... provides a summary, list of synonyms, and the major features. ...
http://www.google.com/Top/Health/Con...ardi_Syndrome/ - 10k - Cached - Similar pages

HON - List of Rare Diseases
Others rare diseases or genetic conditions with:. http://www.orpha.net/, ORPHANET is a database dedicated to information on rare diseases and orphan drugs ...
www.hon.ch/HONselect/RareDiseases/ - 59k - Cached - Similar pages


copied and posted on forum also.

Last edited by Jomar; 02-01-2007 at 12:53 PM.
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Old 07-01-2007, 02:03 AM #3
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Arrow "a World of Health Info at your Fingertips"~

MerckSource
www.mercksource.com/pp/us/cns/cns_home.jsp

Merck Manual-home edition
http://www.mercksource.com/pp/us/cns...manualhome.jsp

Info on Diseases/Disorders, Sx, Dx, Tx and more.....

Last edited by pono; 07-01-2007 at 02:13 AM. Reason: link
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Old 02-25-2009, 07:16 PM #4
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Question Living With an Undiagnosed Illness

This website is my personal story of living with an undiagnosed illness
http://www.undiagnosedillness.org

I do hope this section is ok to share my website details in ?
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"Thanks for this!" says:
Jaspar (01-30-2011), morrtl (09-28-2011)
Old 01-30-2011, 06:27 PM #5
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Investigating underlying medical conditions with psychiatric symptoms:

http://investigatingmentalillness.blogspot.com/

http://itsnotmental.blogspot.com/
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Old 05-25-2012, 04:30 PM #6
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Thumbs up Fahr's disease

Is their a discussion of Fahr's disease? Paula
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Old 05-25-2012, 11:21 PM #7
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I just did a search Paula, and you're one of only 5 people who have posted about this condition since 2009. Sadly for you, it seems it's not a topic that's brought new enquiries over recent times. Maybe you could try adding tags to your threads. That might bring in new people who are also looking for some-one to discuss it with.
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Old 10-19-2012, 08:34 AM #8
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Attention brain cyst

is this where someone will give me advice on an arachnoid cyst? PLEASE?
have been scanned due to many headaches and strange neurological symptoms. but really finding it hard to find out what comes next. Am referred to a neurolosurgeon.
i am symptomatic ...have slurred speech, headaches, extreme tiredness and numbness on one side of face and head...so assume that means need be re,oved
on scan showed a "possible intradiploic arachoid cyst" with no lower margin visible".
any tips on what next??
please
helen
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Old 10-14-2023, 01:02 PM #9
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Default Dysautonomia POTS

Dysautonomia International: Postural Orthostatic Tachycardia Syndrome

Postural Orthostatic Tachycardia Syndrome
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