Home Menu

Site Navigation



General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


advertisement
NeuroTalk Support Groups > > >

Useful Information and Websites

Reply
 
Thread Tools Display Modes
Old 12-06-2006, 01:28 AM #1
Wittesea's Avatar
Wittesea Wittesea is offline
Senior Member
  
Join Date: Aug 2006
Location: East of the River, in the Quiet Corner
Posts: 1,238
15 yr Member
Wittesea Wittesea is offline
Senior Member
Wittesea's Avatar
 
Join Date: Aug 2006
Location: East of the River, in the Quiet Corner
Posts: 1,238
15 yr Member
Arrow Useful Information and Websites
Welcome to the General Health Conditions and Rare Disorders forum here at NeuroTalk.

Please feel free to use this thread to add useful information and to share links to useful websites.
Wittesea is offline   Reply With QuoteReply With Quote

advertisement
Old 02-01-2007, 12:48 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
  
Join Date: Aug 2006
Posts: 27,721
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,721
15 yr Member
Default Rare Conditions list- links
Genetic and Rare Diseases Information Center - Office of Rare Diseases
This list includes rare diseases and conditions for which information ... Department of Health & Human Services · National Institutes of Health · USA.gov.
http://www.rarediseases.org/

Genetic/Rare Conditions National /International Groups
national and international genetic and rare conditions support groups, ... Health On the Net (HONSelect) List of Rare Diseases [English, français, deutsch, ...
www.kumc.edu/gec/support/grouporg.html - 48k - Cached - Similar pages

Google Directory - Health > Conditions and Diseases > Genetic ...
Health > Conditions and Diseases > Rare Disorders (259) ... Lay advocacy groups, support groups, information on genetic conditions and birth defects for ...
http://www.google.com/Top/Health/Con...tic_Disorders/ - 37k - Cached - Similar pages

Google Directory - Health > Conditions and Diseases > Rare ...
Related Categories: Health > Conditions and Diseases > Chronic Illness (71) ... provides a summary, list of synonyms, and the major features. ...
http://www.google.com/Top/Health/Con...ardi_Syndrome/ - 10k - Cached - Similar pages

HON - List of Rare Diseases
Others rare diseases or genetic conditions with:. http://www.orpha.net/, ORPHANET is a database dedicated to information on rare diseases and orphan drugs ...
www.hon.ch/HONselect/RareDiseases/ - 59k - Cached - Similar pages


copied and posted on forum also.
__________________
Search NT -
.
Last edited by Jomar; 02-01-2007 at 12:53 PM.
Jomar is offline   Reply With QuoteReply With Quote
Old 07-01-2007, 02:03 AM #3
pono pono is offline
Member
  
Join Date: May 2007
Posts: 270
15 yr Member
pono pono is offline
Member
 
Join Date: May 2007
Posts: 270
15 yr Member
Arrow "a World of Health Info at your Fingertips"~
MerckSource
www.mercksource.com/pp/us/cns/cns_home.jsp

Merck Manual-home edition
http://www.mercksource.com/pp/us/cns...manualhome.jsp

Info on Diseases/Disorders, Sx, Dx, Tx and more.....
Last edited by pono; 07-01-2007 at 02:13 AM. Reason: link
pono is offline   Reply With QuoteReply With Quote
Old 02-25-2009, 07:16 PM #4
undiagnosedillness's Avatar
undiagnosedillness undiagnosedillness is offline
Junior Member
  
Join Date: Feb 2009
Location: NSW/Australia
Posts: 23
15 yr Member
undiagnosedillness undiagnosedillness is offline
Junior Member
undiagnosedillness's Avatar
 
Join Date: Feb 2009
Location: NSW/Australia
Posts: 23
15 yr Member
Question Living With an Undiagnosed Illness
This website is my personal story of living with an undiagnosed illness
http://www.undiagnosedillness.org

I do hope this section is ok to share my website details in ?
undiagnosedillness is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jaspar (01-30-2011), morrtl (09-28-2011)
Old 01-30-2011, 06:27 PM #5
Jaspar Jaspar is offline
Member
  
Join Date: Oct 2008
Posts: 290
15 yr Member
Jaspar Jaspar is offline
Member
 
Join Date: Oct 2008
Posts: 290
15 yr Member
Default
Investigating underlying medical conditions with psychiatric symptoms:

http://investigatingmentalillness.blogspot.com/

http://itsnotmental.blogspot.com/
Jaspar is offline   Reply With QuoteReply With Quote
Old 05-25-2012, 04:30 PM #6
paulapepper paulapepper is offline
Junior Member
  
Join Date: Jun 2010
Posts: 30
10 yr Member
paulapepper paulapepper is offline
Junior Member
 
Join Date: Jun 2010
Posts: 30
10 yr Member
Thumbs up Fahr's disease
Is their a discussion of Fahr's disease? Paula
paulapepper is offline   Reply With QuoteReply With Quote
Old 05-25-2012, 11:21 PM #7
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
  
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default
I just did a search Paula, and you're one of only 5 people who have posted about this condition since 2009. Sadly for you, it seems it's not a topic that's brought new enquiries over recent times. Maybe you could try adding tags to your threads. That might bring in new people who are also looking for some-one to discuss it with.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.
Koala77 is offline   Reply With QuoteReply With Quote
Old 10-19-2012, 08:34 AM #8
helenhamill helenhamill is offline
Junior Member
  
Join Date: Oct 2012
Location: ireland
Posts: 8
10 yr Member
helenhamill helenhamill is offline
Junior Member
 
Join Date: Oct 2012
Location: ireland
Posts: 8
10 yr Member
Attention brain cyst
is this where someone will give me advice on an arachnoid cyst? PLEASE?
have been scanned due to many headaches and strange neurological symptoms. but really finding it hard to find out what comes next. Am referred to a neurolosurgeon.
i am symptomatic ...have slurred speech, headaches, extreme tiredness and numbness on one side of face and head...so assume that means need be re,oved
on scan showed a "possible intradiploic arachoid cyst" with no lower margin visible".
any tips on what next??
please
helen
helenhamill is offline   Reply With QuoteReply With Quote
Old 10-14-2023, 01:02 PM #9
Lara's Avatar
Lara Lara is offline
Legendary
  
Join Date: Sep 2006
Location: Far North Queensland
Posts: 11,009
15 yr Member
Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: Far North Queensland
Posts: 11,009
15 yr Member
Default Dysautonomia POTS
Dysautonomia International: Postural Orthostatic Tachycardia Syndrome

Postural Orthostatic Tachycardia Syndrome
Lara is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Useful Websites & Resources for Tourette Syndrome Chemar Tourette Syndrome 14 03-22-2018 10:52 AM
Useful Websites and Resources for Anxiety & OCD Chemar Anxiety and OCD 11 05-02-2013 05:51 PM
usfull websites Kpryor35 Thoracic Outlet Syndrome 4 10-19-2006 12:33 AM


All times are GMT -5. The time now is 06:58 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home