I'm speechless. But a hug can say a lot

How is your Thyroid? I was your age when I seemed to start 'falling apart' and alot of it had to do with HyPOthyroid issues......
Have you had recent T levels checked?

I remember seeing a documentary on TV about a bone growth disorder.....
So i think i can kind of grasp what you may be dealing with. The documentary was wayyy more over-the-top than what you describe, but still.... I'm so sorry you are faced with all of this.

Please stick with us
We all learn from each other and that's how we gain our strength and hope

Rae

That or gluten sensitivity may be what you are looking at. One of the best sites is** celiac **(I can't post links yet) - they even have a link to associated conditions that can be seen with CD (and you have quite a few.....).

i was thinking that it sounds to me like problems with the thyroid & parathyroid..........the adrenals come into play, too.........the adrenals & thyroid alternately effect each other' performance..........& the parathyroid can b stimulated in much the same way............

the digestion comes into play too.......cause if there isn't enough hydrochloric acid in the stomach, things don't get in solution in the right way that the body can use it........... when there's enough acid, in the right form, things r utilized much better....... i'm with the other person about something systemic.......maybe even autoimmune...........

the parathyroid controls bone formation & the breakdown of the same things........if there is a serious imbalance, then u could b getting too much of the wrong hormones causing bone formation in the wrong places........the body is suppose to dispose of excess bone minerals, when there is no need.........something is wrong with this process........

all of this is speculation, but i can tell u, that when there is something wrong with the thyroid, then the adrenals r involved & vise-versa.........& the parathyroid glands r right in there..........it's all a finely tuned symphony.......

do u take alot of vitamin C, cause it's one of those things that help with the whole thing..........

I went to Mayo along with about 4 other physicians and still nobody can figure out what is wrong. I now have pancreatic cystic structures that keep growing back..I'm so tired I now have to take caffeine all day and b-12 shots daily to stay awake at work. I swear I have seen every Dr. but nobody takes all my problems seriously or looks at them all together..Each Dr. only wants to look at their little specialty. I have been gaining weight even though I have lost all appetite and don't hardly eat. I am at my wits end..I am so desperate that I have started praying to die. I can't live this way anymore. I am threatened at work with being fired if I ever "nod off" again...I don't like being this tired but I can't help it..I have a pancreas biopsy this week. Hope they find something..I appreciate everyone's ideas and posts..I need a Dr. House, I think...

Delandra

Delandra, have you heard of SAPHO Syndrome? My niece has this and your symptoms are almost identical.

SAPHO syndrome is a chronic disorder that involves the skin, bone, and joints. SAPHO is an eponym for the combination of synovitis, acne, pustulosis, hyperostosis, and osteitis.

http://www.medicinenet.com/sapho_syndrome/article.htm

It took ages for my niece to get diagnosed but now she's getting the proper treatment, her quality of life has improved drastically. She's now doing well on Salazopyrin but her physician says he'll do a short trial of Methotrexate if she has another bad replapse.

I have been to Mayo and have also seen about 8 Dr.'s at Dallas's UTSW. Still nobody can figure out my pernicious anemia/Vitamin D definiency/recurrent pancreatic cystic lesions/abnormal bone growths/horrible fatigue. I see an endocrinologist but they don't seem to take me seriously. I'm about ready to give up. I appreciate everyone's input. I read them all!! Thanks!

what are your proteins? m-protein or light chain issues?

Try researching SAPHO. A technecium bone scan, this helps a rheumatologist confirm it and start treating it fast. I have more than 5 bone lesions. Keep researching. Keep trying. Go to a university hospital. UCLA.