General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


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Old 06-21-2009, 11:21 AM #1
Rebe Rebe is offline
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Confused facial paralysis- Looking for others

Hi i was born with congenital facial paralysis on the left side of my face there is no know cause for the condition in my case as i present none of the conditions or syndromes that usually cause the condition. In a couple of weeks i am to undergo a free muscle graft. This condition is something i have struggled with my whole life and i should be happy to undergo this surgery that will provide me with a smile but i am not. I am going to go through with the surgery but I would love to talk to any one who also has facial paralysis. This has been something i have largely ignored and refused to talk about up until now but i think i need to talk about it or I will never be comfortable with myself.
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Old 06-22-2009, 07:23 AM #2
Cazz Cazz is offline
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Default My daughter has right side facial paralysis

Hi, My 14 year old daughter was born with right side facial paralysis and has had a muscle transfer, (from her thigh into her cheek) She was in hospital a few weeks ago for more surgery to re-attach this muscle. I have photos of her surgery if you are interested in viewing them.

I wish you well with what ever you decide.

Cazz




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Originally Posted by Rebe View Post
Hi i was born with congenital facial paralysis on the left side of my face there is no know cause for the condition in my case as i present none of the conditions or syndromes that usually cause the condition. In a couple of weeks i am to undergo a free muscle graft. This condition is something i have struggled with my whole life and i should be happy to undergo this surgery that will provide me with a smile but i am not. I am going to go through with the surgery but I would love to talk to any one who also has facial paralysis. This has been something i have largely ignored and refused to talk about up until now but i think i need to talk about it or I will never be comfortable with myself.
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Old 06-22-2009, 09:31 PM #3
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Thanks

I think I am probably about to have the same procedure, did your daughter have a cross-facial nerve graft first? I had one years ago when i was five, but that was so long ago that they are attaching the muscle to a nerve from one of my chewing muscles instead of trying to use the old graft.
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Old 07-03-2009, 08:00 PM #4
starfishblues starfishblues is offline
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hi guys, i also have facial paralysis. in my case, it is bilateral. it is caused by a bleed on my brainstem that damaged the 6th, 7th, and 8th cranial nerves (the seventh being the one that controls facial muscles.) since there is considerable damage to the nerve ending that controls my facial muscles, and my paralysis is bilateral, a facial graft operation will not work for me. however, physical therapy has helped me regain some of the tone and structure of my facial muscles. i am currently in graduate school, but as soon as i graduate, i plan on having more therapy for my condition.
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Old 07-07-2009, 06:05 AM #5
Cazz Cazz is offline
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Hi,

My daughter had a gracilious (sp?) muscle transfer about 4 years ago, the muscle had detached twice in that time and this last time the DR said they needed to be more agresssive when they re-attached the muscle. It has been about 6 weeks since her last surgery and she had a check up last week, the Dr said that the muscle had been bleeding at some stage and she now has some hematomas in her cheek that will need to be removed. Even with all the small compications she has had she still is over the moon with her new smile and never lets any of the set backs get her dwn. She is just happy that she nolonger drools and the kids at school are not tormenting her and making her life a misery. My daughter smile spontaniously now, she does not have to bite down or even think about her smile for it to work. The Dr said he was a little surprised at how well her smile works.

I realise this probably doesn't help you a great deal, I wish I could offer you more information about the surgery. Have you looked on the Moebuis Foundation Website? There is a huge amount of information about the surgeries and the DRs that do these operations.

take care
Cazz
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