General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


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Old 01-17-2009, 02:14 PM #51
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Originally Posted by katweena11 View Post
Hi everyone! I'm new here so please excuse me if I'm barging in on this thread but I'm getting desperate!
So many here seem to have an allergy to nickel so what better place to start
So here's my story...
I've been getting puffy, red itchy flaking eyes for about a year on and off. Been to several doctors and it's been nothing more than a run around.
I've also gotten a patch test and the only thing that has come up is nickel. Even without make-up I get flare ups. So my question is:

could I get a reaction only on my eyes if it's nickel in food related?

Thanks in advance!
Katrina
Hi Katrina
What about eye glasses with metal frames?
Hergie
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Old 01-18-2009, 11:10 AM #52
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Yes - it is possible to just have the reaction of nickel to show up on your body in just one or two places - I on the other hand am not so lucky as I often get a full body rash... a body rash that once made my dermatologist think I had Lupus.

And I second the suggestion to look into what your eye glasses are made of (if you wear any) and or sunglass..... and all females should always look into what their make-up is made of - I had to give up wearing make all together up after my allergies started.
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Old 01-22-2009, 01:35 AM #53
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Default Loss of Structural Fat

Through a series if anaphalactic angio edema attachs during which I experience rapid weight loss (about 5#'s in course of 10-15 days), my structural fat has been depleteded, Although my weight has returned to normal, partially due to the use of a testostirone cream, the pads of my fingers, hands, toes and feet remain very thin and it makes walking difficult. I'd appreciate hearing from others who have experienced this. I've patch tested positive for Goldsodiumthiosulfate (found in dental prosthetics), nickelsulfate hexahydrate, potossium dichromate and Quaternium 15. The gold crowns went 2 years ago and I'm now thinking my continuing eposodes, primariy being a swolen mouth 24/7 may be connected to nickel. And there has been a slight improvement since staying away from nichel/stainless steel, etc. in the last week. I'd love to here from any of you with experiences of a similar nature and what worked for you. Thanks
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Old 02-22-2009, 11:58 AM #54
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My first response here or any blog... but I am having a nickel sulfate reaction only around my eyes. It's incredibly painful and definitely not attractive. I was convinced after spending Christmas Day with cold compresses on my eyes it was because I was drinking red wine the weekend before. Since that day I have only been drinking white wine. And it didn't go away completely. But I am broken out worse today. The doctor says that the skin around the eyes is the most sensitive and that may be why the reaction centers there. I've been reading today about nickel sulfate in red wine and white wine and in all the products you all write about here. But I also came up positive on Lyral which is a fragrance in many, many products. I fortunately have been given an ointment which takes away the symptoms but it's a steriod and can't be used all the time. This is really depressing.
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Old 02-23-2009, 12:35 AM #55
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Default My daughter has been allergic since birth

Thank you for this community. My daughter first reacted to nickel when she was a baby from the snaps of her onsies. She is now 11, and I have let so much damage go on. She is obese, rash from head to toe, severe scars from rash near the rivots in her jeans, eczema, swollen lips, and just looks like she is retaining water. I have done everything you can think of to eliminate the contact. It has just really hit me. I make her eat nickel in high doses every day by giving her a granola bar, eating nuts for snacks, can vegetables and soups, salads, wheat bread. I could go on,... Pretty much everything on the lists. I want to cry. I have been doing everything wrong. Trying to make her eat better has only forced more nickel into her diet. I could go on and on about her symptoms and reactions and such. She is very active in sports, but is very exhausted other times. Looking back she has always experienced a lot of upset tummys and vomitting. I have wanted to help her eat right for her weight and health, and I am practically poisoning her. She has dermatologist and Peditrician. But its down to the diet and more strict no contact to nickel. I wondered if the Atkins diet would be a plan and an idea for a day to day following. I do not want to give up. I want her to feel better. Gosh the school lunches probably serve their vegetable and other things out of cans, the water fountain, WOW!!!!
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Old 02-23-2009, 01:13 AM #56
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Originally Posted by joyse View Post
My first response here or any blog... but I am having a nickel sulfate reaction only around my eyes. It's incredibly painful and definitely not attractive. I was convinced after spending Christmas Day with cold compresses on my eyes it was because I was drinking red wine the weekend before. Since that day I have only been drinking white wine. And it didn't go away completely. But I am broken out worse today. The doctor says that the skin around the eyes is the most sensitive and that may be why the reaction centers there. I've been reading today about nickel sulfate in red wine and white wine and in all the products you all write about here. But I also came up positive on Lyral which is a fragrance in many, many products. I fortunately have been given an ointment which takes away the symptoms but it's a steriod and can't be used all the time. This is really depressing.
Hi Joyse
There are a very few wines that don't have sulfates added that if you're lucky you might find. I know don't give my wife ordaughter-in-law the red rashes they used to get. These are generally listed as organic although you have to be carefull with them also. Some of "Chapoutier's" wines I believe are sulfate free. Otherwise I can send you a bottle of Canadian Rye Whiskey and you can forget about the wines.

On another subject, I do take one perscription mediacation; "zopoclone". I believe the trade name it sold under are Lunesta and Ambien and today saw a TV add for the latter which stated that swollen mouth and tounge were side effects. Maybe that' part (or a lot) of my problem and will try to live without it for a few days to see if there is a change in swelkling, but I was wondering if there was anyone else who had experience either with the swollen mouth or Ambien?
Herbie

This
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Old 02-25-2009, 07:01 AM #57
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Default HELLLLLLP! This is driving me crazy!

Hi there,
I feel so much better now that i've found this site!
I've been allergic to Nickel for over a year now, most of that time was spent trying to find out what this misterious rash was!
I've been to the doctors and dermatologists time after time only to walk out in fits of tears and a perscription for anti-hystomines(?)
Ive now been told im immune to anytype of anti-hystomines and awaiting yet another dermatologist appointment.

I was put on steriod tablets for a while, this may be helpfull to some. It helped start to clear the painfull rash, but i became severly depressed on them and was advised by my doctor to stop the tablets.

I feel kind of thrown into the deep end at this stage. Being told you have a nickel allergy and then your left to just deal and figure out for yourself how to cope!

But how?!! How can you avoid contact with nickel?! its in almost EVERYTHING!
Simple tasks such as opening my bedroom door, or flushing the toilet, washing your hands. These tasks cannot be completed without touching nickel! As far as i know!

I have not tryed the nickel free diet yet, but i would like to know if anyone could reccomend any sites that explain this diet. Part of my reaction is on the corner of my lip and sometimes i can't even open my mouth in order to eat as the skin cracks deeply. Possibly a nickle-free diet could be the awnser?

I wondered if anyone knew any razors i could use for shaving that do not contain nickel?

Also does glitter contain nickel?

Can i get a peircing and what jewelry can i wear?
I used to have 7 ear peircings, but upon finding out about the allergy i have removed the earings and they have sadly closed up. sadface.

Can i have a tattoo safely?

I know some of my questions may sound stupid, but i just don't know what to do anymore. There's no way of figuring out if an item in question contains nickel as it doesn't come with a list of ingredients/componants like food does.
Ive looked everywhere and i've had no luck so far.

I also read a few months ago that a nickel allergy can be classed as a long term disability depending on the severity, does anyone know how true this is?

Id love to hear back from anyone,
thanks a bunchhh! =]

xx
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Old 02-27-2009, 11:12 AM #58
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Can i get a peircing and what jewelry can i wear?
Can i have a tattoo safely?

Platinum Jewelry is the way to go when one has an allergy to nickel - Ebay has some nice pieces to choose from, check them out - I have and now I can safely wear jewelry again.

As far as the tattoo goes.... the ink does have metal in it, therefore, I would have the artist do a skin test to see how sensitive you are or are not to the ink.... some people are more sensitive than others.
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Old 03-03-2009, 06:08 AM #59
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Platinum Jewelry is the way to go when one has an allergy to nickel - Ebay has some nice pieces to choose from, check them out - I have and now I can safely wear jewelry again.

As far as the tattoo goes.... the ink does have metal in it, therefore, I would have the artist do a skin test to see how sensitive you are or are not to the ink.... some people are more sensitive than others.

Whoa, thanks! I really want my tongue peirced, apparently you can get plastic jewelery, but its more what the use to peirce it that im worried about, nothing that a bit of research can't sort out! =]

This is the most advice ive had for over a year! I walked into my doctors about a month ago and i had to explain to my doctor what a nickel allergy was!! Ridiculous!
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Old 03-03-2009, 10:58 PM #60
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i think i am allergic to nickel too, as i react very badly to cheap earring and chains. a few years ago, i had my ears pierced with a needle at a piercing & tattoo shop with surgical steel earrings locked with a little bead. they said they were nickel free, verbally only, but they said they couldn't officially confirm it in writing because no documentation was available. after one full year of struggling with severe infection that refused to heal, even with very good hygiene (3 times a day cleaning with a natural product they were selling, containing essential oils, then a contact lenses saline cleaner for sensitive eyes, then, rubbing alcohol) i decided to remove the rings for good. i suspect that they were not really nickel free, but who knows.

on my 2 other sets of ear piercings, i wear silver sterling earrings, as well as neck chains, from Mexico or India, without problem, on a regular basis. i'm not sure if there is any nickel in silver sterling?

my eyeglasses frames are made of titanium and plastic. i never had any problems with them.
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