I am in a terrible flare of vasculitis, with Hep C being the systemic problem. I'm feeling very alone. Most people don't understand understand how painful vasculitis is and the neuropathy that goes along with it. I'm presently on Humira injections and prednisone. Is there anyone out there in a similar situation? I have faith things will improve, but could sure use a little support.

Thank you,
Faithful

Hello faithful and welcome to NeuroTalk. I was sorry to read that you've been afflicted with this very painful disease. We have had other members post about similar conditions ... like necrosing vasculitis ... but I didn't read all the posts to see if they'd be helpful to you or not.

Here's a link to their posts so you can read through them all.
http://neurotalk.psychcentral.com/se...ery=vasculitis

What I did notice however, was that most of those sufferers tend to post in the Peripheral Neuropathy thread, so it might be a good idea to try posting there as well. Here's a link to that forum in case you haven't found it yet. http://neurotalk.psychcentral.com/forum20.html

I was diagnosed with Hep C in 2001, was treated and the virus disappeard within 6 months and has not come back. I had an attack of necrotizing vasculitis in 2003 which was severe. I was treated for the vasculitis with prednisone and cytoxin for 6 months. I blew up like a baloon! Since then I've had peripheral neuropathy that was manageable with 1200 mg of neurontin each day for 5 years. In the last 18 months, however, the neuropathy has gotten much more painful. I take 3600 mg. on neurontin now, which my neurologist says is the maximum. I don't know what to do next. The pain and inabiltity to walk or stand for more than a couple on minutes is depressing. What is Humira?