Okay, so a while back Cara invited me to hang out on this forum for a while. Her regard for all of you who "live" here seems to be very great indeed, and after several weeks of lurking I tend to agree.

The problem is that my problem is very unlikely to be caused by GS or CD. But since it began as an abdominal problem, and is largely still so, I am hoping that maybe some of you wise people might have heard or come across a problem such as mine.

My condition began with a VERY small irritation in my left side. It felt precisely like a small splinter was wedged inside my abdomen, and when I moved or twisted my torso in certain ways, I could feel a pricking sensation. After about a month a knot of pain formed around the area, and that's when I finally went to the doc. Blood work showed that I had a high WBC, and slightly elevated liver enzymes, so he diagnosed me with DVT and put me on antibiotics. And of course that didn't work.

Over time the pain in my side grew, but for a year it remained in my left side. Then I began having GI complications, and developed FMS. Slowly and cruelly, this demon inside me has grown and spread, and no one can find it's cause. I've had virtually every scan and procedure including two colonoscopies and a laparoscopy. Recently the pain spread down my leg to my ankle, which has brought up the question of whether it might be some rare "muscle-wasting disease". Since virtually every organ of the body except for the brain has muscle in it, this condition could theoretically cause all of my symptoms.

But the center of the problem is still located in my abdomen, and I feel that the answer lies there. That's where the thread began, and where it still resides even when the other pains recede for a while. I am very worried because it's becoming increasingly evident that this is a slowly progressive condition, and there's no telling when or where it might stop. I don't think I could survive this pain if it were to consume my whole body.

I've seen at least two of almost every kind of specialist there is, and am still seeing them on a regular basis. But all of them seem at a total loss. If there is anyone here who has heard of a condition in any way similar to mine, I will thank you until my dying day if you would share it with me. As you can probably imagine, I have studied medicine quite diligently for the past few years, and have become quite knowledgeable, though apparently not knowledgeable enough.

Please, if there is anyone who thinks they might have a clue, no matter how insignificant it might seem, will you share it with me??? Thank you very much for reading all this.

Sincerely thankful,
Idealist