I wish my sister and father would get gene tested. It would be very interesting to me, to know what genes they have. I have double DQ1 genes, so my dad has to have one DQ1 gene. They have both been diagnosed celiac, without gene testing. I didn't have any insurance, nor money 9 yrs ago, so I went gluten free after seeing how much better my sister was. We both had the same issues, except she was very iron deficient, even having iron transfusions before going gluten free. Of course, 9 years later, my ferritin level was just above anemia, so I guess my iron isn't so good either.

DQ1 definitely is a gluten intolerance gene, and I have been told, a neuropathy gene. Even if I didn't know my genes, I would still be gluten free. Just a tiny CC makes me ill for weeks, so I made the best decision for me.