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Old 12-10-2009, 07:59 AM #1
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Default Watch this video on non-celiac gluten sensitivity

Quote:
Originally Posted by neurocitizen View Post
I've had a myriad of tests after experiencing a small fiber-like neuropathy for the last year. The only thing that came out abnormal was a positive gliadin reading of 38. My neuro thought I might have Celiac so I went to a GI specialist. I had an endoscopy and the results were negative for celiac. So they did a prometheus blood test to check me for a celiac gene called DQ alpha and beta 1. The results say "yes" for celiac gene pairs present. I've been gluten free for about 4 months now and the neuropathy is lessening, although not completely gone.

My question is could I just have gluten sensitivity and not have Celiac? Are they different? I have no other symptoms. Thanks.
You can have non-celiac gluten sensitivity. *edit* In essence, it is possible to have gluten sensitivity in the absence of celiac disease. *edit*

Last edited by Chemar; 12-10-2009 at 09:29 AM. Reason: NeuroTalk Guidleines
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Old 12-11-2009, 08:01 AM #2
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Right now, I am wondering if I should have a DQ1 test . . . still learning . . . I was diagnosed in September 2009.

I wish my sister and father would get gene tested. It would be very interesting to me, to know what genes they have. I have double DQ1 genes, so my dad has to have one DQ1 gene. They have both been diagnosed celiac, without gene testing. I didn't have any insurance, nor money 9 yrs ago, so I went gluten free after seeing how much better my sister was. We both had the same issues, except she was very iron deficient, even having iron transfusions before going gluten free. Of course, 9 years later, my ferritin level was just above anemia, so I guess my iron isn't so good either.

DQ1 definitely is a gluten intolerance gene, and I have been told, a neuropathy gene. Even if I didn't know my genes, I would still be gluten free. Just a tiny CC makes me ill for weeks, so I made the best decision for me.
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