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Old 01-09-2007, 08:17 PM #1
NancyM NancyM is offline
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Default "Gold Standard" rant

[rant on]
I hate that phrase. It seems like in the case of Celiac disease it is bronze or iron standard appropriate for the bronze or iron age of humanity.
[/rant]

What does "gold standard" make you think of? Other than pinching off the heads of incredibly dense doctors?
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Old 01-09-2007, 11:17 PM #2
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flour nancy...it makes me think of gold medal flour.
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Old 01-10-2007, 12:25 AM #3
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The "gold standard" is the "old standard" ...

I share your frustration Nancy!
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Old 01-11-2007, 12:34 PM #4
mistofviolets mistofviolets is offline
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I never really thought of it like that. Although...now that you mention it, it makes it sound like a race or competition

I'm upset about Stanford clinic...I keep overhearing or reading stuff about them and how they told so and so that they don't have celiac and can't get in. They literally decided on a set criteria, blood work genes and biopsy; and if you don't meet it they don't want to study you to learn more about celiac/gluten sensitivity. I mean, really!!! Thats not a research clinic...its a clique.

Sorry...I'm going off topic...or maybe not...they need the gold standard to earn their gold?
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Old 01-11-2007, 02:39 PM #5
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Quote:
Originally Posted by mistofviolets View Post
I'm upset about Stanford clinic...I keep overhearing or reading stuff about them and how they told so and so that they don't have celiac and can't get in. They literally decided on a set criteria, blood work genes and biopsy; and if you don't meet it they don't want to study you to learn more about celiac/gluten sensitivity.
Unfortunately that is our current standard and definition of CD. The standard and definition need to change, but 1st the thinking of those that make those rules need to change. Slowly I think that is happening.

How long did it take for others to catch up to Galileo on his theory about the real center of the universe? Hopefully it won't take that long!!
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Old 01-12-2007, 08:52 PM #6
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You know, you get much the same kind of mind set of "set minds" in other diseases as well. I'm thinking especially of my own disease, myasthenia gravis. Since I don't have the antibodies, and don't really have classical MG, I'm basically cut off from treatment by a neurologist, even though I was originally diagnosed by an expert in MG. It's like they've been taught a certain thing in Med school, and nothing in the real world is going to change that idea.
Well, that's my rant added to the rest! Now, I'm going to go back to learning how to bake GF! That I can control, hopefully!
Hugs,
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