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Old 09-19-2006, 09:23 AM #1
lmb3 lmb3 is offline
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Default Back to no answers

Well - we received the test results from Ellie's repeat Thyroid and it was normal. So we are back to the doc not having an answer for her constipation and failure to thrive. They don't want to even see her for another 6-8 months!

I am not going to wait that long. She is going GF. She is DQ2 and DQ8 and with her symptoms and our family history - I have no doubt it is CD presenting itself in the early stages. The doc even thinks this way, but he feels constrained by the medical community in regards to making an official dx. Well - I don't need that in order to change my child's diet!
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Lisa
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[Celiac Disease]

Kara - Age 13 [ADD, Lactose Intolerance, Mild Hypertension, Fast heart beat] - Currently testing for Celiac
Michael - Age 6 [Gluten Intolerance, Gluten Ataxia, IgA Deficiency, DQ2, Asthma, Mitochondrial Dysfunction, GERD, CAPD]
Ellie - Age 4 - Celiac Disease
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Old 09-19-2006, 09:55 AM #2
jamietwo jamietwo is offline
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Sorry you didn't get the answers you were looking for, but I'm so glad to hear you're changing your daughter's diet! I too believe you'll have remarkable results!
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Old 09-19-2006, 03:00 PM #3
KimS KimS is offline
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Hi Lisa,

I'm very sorry to hear about that.

However, I'm glad you're changing her diet anyway.

I see she's got a fast heartbeat. That makes me want to suggest that you do a complete elimination diet for her to remove everything that's affecting her negatively.

With ds, we had to remove all trace gluten, corn, oats, nightshade and the entire lily family as well as refined sugar. There may have been more but I can't remember now. His diet has expanded a great deal since then as his gut has healed over the years. His system still runs pretty high but not as high as it used to. It's easy to tell because he hardly ever catches 'colds' anymore.
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01/02/2002 Even Small Amounts of Gluten Cause Relapse in Children With Celiac Disease (Docguide.com) 12/20/2002 The symptomatic and histologic response to a gf diet with borderline enteropathy (Docguide.com)
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Old 09-19-2006, 04:12 PM #4
jccgf jccgf is offline
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Thanks for the update, and we will all be anxious to hear of any progress. Wouldn't it be amazing if she started to gain weight ?

Cara
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Old 09-19-2006, 07:01 PM #5
annelb annelb is offline
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It is nice to get a definite answer with tests but when that does not happen, I agree it makes all the sense in the world to give the GF life a trial. I agree fully with your decision. I hope everyong in the family is in agreement - makes life easier.

Keep us updated on your DD's progress.
Anne
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Old 09-19-2006, 07:13 PM #6
graceperson graceperson is offline
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Smart lady....lucky child!! Grace
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