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Old 01-29-2007, 06:55 AM #1
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Confused My very sick grandson, Ethin.........

Can a baby be born already ill with celiac disease?

Ethin was born on Oct 27th weighing close to 8#. He was a fullterm baby, no real pregnancy complications. He was born Hemophiliac Type D, which the doctor stated happens sometimes and usually corrects itself by 6 months of age. On the Thursday before Christmas, Ethin was admitted to the hospital for a croupy cough. First they were thinking whooping cough, then RSV--both tests coming back negative. At this time, they did find that Ethin does not utilize his protein properly, so he was put on meds for that, then they also determined that he has sleep apnea, so on Christmas Day, he was sent home with his new meds and a monitor. On New Years Day, he was admitted to the hospital again, he had turned blue 4 times that day and the last time his pulse rate remained slow and he still had the cough. The doctors thought that maybe he was not getting enough oxygen to his brain, they did a cat scan and an MRI and found nothing. They did say he has GERD and that his little tummy was pressing on his lungs, causing the cough. (It all happened so quickly, I may have a few of the problems on the wrong date--the GERD may have been at the first hospital stay.) He has also been said to be lactose intolerant, so he was on soy formula. Last week the doctor put him on a special hypo-allergenic formula, he is only up to 10# (just turned 3 months on Saturday) and he does still have the turning blue incidents. I do not know who his doctor is, yet I do know he was in one of the best hospital in the US--Sparrow. I do not doubt the care he received in that hospital.

When I was on vacation, I was not allowed to meet my grandson, the mother and my son are not together at this time, even though they seem to be. At any rate, she wouldn't let me see him in December, yet she calls all the time for advice. I just wonder if any of you have ever known of a baby born ill with celiac disease? So many problems for such a tiny guy. I will add, I have not disregarded the fact that the mother is a smoker and loves her drink, which could also be Ethin's problem.
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Old 01-29-2007, 10:09 AM #2
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Quote:
Originally Posted by darlindeb25 View Post
I will add, I have not disregarded the fact that the mother is a smoker and loves her drink, which could also be Ethin's problem.
So much for my suggestion to attempt relactation. So sorry to hear your grandson is having such trouble and that you haven't had a chance to meet him.
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Old 01-29-2007, 12:47 PM #3
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Infants can be born with all sorts of issues. But, I don't think gluten is in formula? However...there is corn in formula. In fact, the only corn free formula is Alimentum Ready to Feed (the powdered one has corn) Some babies are allergic to corn. In fact, I've run across a few moms who were either trying to order Mare's milk from England or had to build their own elemental formula to avoid both corn and milk. (very scary stuff)

When he turns blue is he all blue? I remember my first dd turning half blue and calling the dr all freaked out...and he said just to turn her over. She immediately pinked up :P He said not to leave her lying on her side for too long, but I can't remember the whole explanation.

I know that baby wearing helps a lot of babies with apnea issues. Infants learn breathing from their parents modelling it, and will pace their breathing similarly to an adults if cosleeping (which I don't advise if dil is smoking or drinking or even taking cold meds) Breathing expired air somehow triggers them to inhale, as well. (I beleive this info came from Anthropologist Meredith Small, I seem to recall reading it in Our Babies Ourselves)
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Old 01-29-2007, 06:51 PM #4
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I have never asked about his turning blue--all or part of him. I do know that after he was in the hospital for some time, my son noticed that he was still blue around his mouth and nose and he did mention that to the nurse. IT's all just so scary. I wish the doctor would try Alimentum. I guess, only time will tell.

Thank you all.
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