[Mrs. Bear]

Con has stretchy ligaments. Ankle instability, patella something or other. He starts physical therapy on Monday. When we got home from the doc, his uncle (daddy's brother, not brother bear) was here and we were explaining what was going on and he has the same thing. They both can walk on the outsides of their feet and pull their thumbs all the way down to their fore-arms. Yes, it looks painful.

So, gluten anyone? I don't remember anybody saying anything about something like this being related to celiac. But the doc said it's hereditary as well. (Didn't say anything about Celiac in fact. But the family doc asked me if I thought it was. *shakes head and wonders when I got a medical degree.)

WEIRD.

Con is just greatful that we know what is wrong and that there is something we can do about it with out pills. (We are all hating pills right now. )

[rachelb]

My son has really loose ligaments, too. GF diet hasn't helped this at all.

Rachel

[NancyM]

My rheumy calls that hypermobility and says you're born with it. I also have this. If it is severe enough they call it Ehlers Danlos syndrome. My rheumy said try not to hyperextend anything. It doesn't hurt until you're older and those joints have taken a lot of abuse over the years.

[bluesky63]

Explore this link -- really interesting hypotheses about nutritional deficiencies and hypermobility/Ehlers-Danlos:

http://www.ctds.info/ehlers_danlos_diet.html

[jccgf]

Hi bluesky63! Wow...its been a long time since you've dropped by. Nice to see you .

Cara

[Mrs. Bear]

So far the orth didn't say anything about Ehlers-Danlos. He said it's pattelofemeral syndrome. Ankle instability from ligament hypermobility causing flat feet that causes the pattela to pull out of it's tracking.

Thank you so much for the link Bluesky. It was very helpful.

I found one thing that relates to allergies, but it's not conclusive and extremely vauge.

But I found out which side of the family it comes from. Daddy. Shoowee. All of those boys are flexible creatures.

He is so happy to know this can be "fixed" and that he should be able to go and play with his friends and perform in gym and that he is not just a wimp. He's even excited about phyical therapy.

He's been really good about the wheat woopies. Very alert. He has a teacher at school who has celiac and they have banded together to keep the wheat of the world away from them. LOL She is an absolutely wonderful woman and Con is so happy just to know her. He's actually very good for her. (An anomily in itself. He's such an oppinionated young man. )

[rachelb]

So what is it you do about it? Orthotics? My son wears orthotics and they have helped. (Wish we'd done them much earlier.)

Rachel

[JudyLV]

Thanks for the link Bluesky. My younger son has a chest deformity that has grown to the point of making it uncomfortable to lie on his stomach and he also gets teased about it. I have a feeling that this all started during his malabsorption phase. It is addressed on that website so I know I am not just making that up. Now I will go double check his vitamins for zinc and maybe have his zinc levels tested next time he has blood work.
--Judy

[KimS]

Originally Posted by Mrs. Bear

He has a teacher at school who has celiac and they have banded together to keep the wheat of the world away from them. LOL She is an absolutely wonderful woman and Con is so happy just to know her. He's actually very good for her. (An anomily in itself. He's such an oppinionated young man. )

I love hearing about teachers like that! It's nice knowing that some of our children are in very good hands.