Hi every one, I'm new here, i'm not good with computers so please bare with me, and I dont normaly join forums.
i'm trying very hard to solve a 12 year mystery, after not having alot of luck with dr's i'm kinda doing it alone,
anyway here goes nothing,
after the birth of my daughter 22 years ago, i started getting very bad IBS, i didnt know what it was but knew it was driving me Quite batty, as the insomnia started setting in, i 'd never had great bowels in my whole life so it did'nt suprise me. it kinda crept upon me slowly. and i just learnt to live with it. when my daughter was 9 we travelled for the first time over sea's
when we a long flight about 24 hours, with 1 stop over, when we arrived, i got off the plane rocking, swaying,and had what appered to be an elusion of floating on a boat, it stayed with me for a year, my balance was shot, i'd fall over all the time ect, I worked for a year like this, it never went away, we came home and i went to an ENT who told me i had a thing called Mal de debarquement, in the past 12 years ive had many remissions and then as soon as i get on another moving platform, such as a boat ,plane,rollercoaster,tredmill, i'm back swaying rocking again.
I've seen many drs with no answers, i do know what this syndrome is , and I understand it. thats not my problem! i recently decided to at least cure my IBS by doing an alimination diet, and to my surprise and sheer luck the first thing i gave up was gluten,(wheat). and low and behold my IBS was gone with in about, A month, my head was clear like i never knew it could be, I felt like a million bucks! could read flutently for the first time in my life, as i was always told I had dyslexia.
so I started reading about wheat allergies and found out all about celiacs desease, unfortunatley, I'd already gone on a gluten free diet so could not be properly diagnosed. them (now I"LL get to the piont) I put myself on B12 sublingal tabs, and with in 1 months of taking them i went into remission, no more rocking or balance problems, so i put it down to having celiacs, but the Doc's all said no, i didnt have the runs, or the comen rash, that a celiac gets, so i cant have celiacs and told me that a colon biopsy would show nothing because of the gluten free diet so I just gave up , and didnt bother taking anymore B12, and BANG! 2 months with out b12 and my its back again, rocking and rolling, so i'm back taking it again, my symptoms are many, pain nerve pain, gait probs,head and eye' pain,like electric shocks, legs so tired and sore they'r like tree trunks,hot spots on my legs for no reason, itching all over no rash, palputation. I could go on and on.
now i'm reading about gluten ataxia,and i wanted to know if any one here could elighten me about the tests that should be carried out for gluten atxia, as i personaly believe its has been the gluten all along, that has screwed with my brain and body, that started the ball rolling in the first place,
please if anyone has any ideas, i'd be truly greatfull, thanks jen. so sorry my post was so long.