NeuroTalk Support Groups - Gluten Intolerant but not Celiac?

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- Gluten Sensitivity / Celiac Disease (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/)

- - Gluten Intolerant but not Celiac? (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/167967-gluten-intolerant-celiac.html)

Quote:

Originally Posted by glenntaj (Post 896171)

--should be able at least not only to look at what is going on in the stomach, but in the duodenum, which does contain villi and from which samples can be taken.

Sometimes, evidence of frank celiac may be found there. But, as noted, the damage to villi may be patchy, and may occur farther down the small intestine. And a standard endoscopy may not get that far down--for one thing, a different, smaller scope may need to be used.

There were a spate of recent articles referencing a study concluding underdiagnosis of celiac due to lack of sufficient villous samples taken on "standard" small intestine biopsies--here's one link to it (and it gives the original study reference):

http://www.stonehearthnewsletters.co...nored/updates/

Thank you Glenn for your reply.

Do you think that it would be wise if i request another test, not using the "deaminated", just before considering the biopsy?

I am wondering if one is celiac, can she/he still absorb nutrients? I ask this because i am taking Vit B12 (just an example) and my blood shows the max number after 3 months, which means that I absorb VitB12. I am not sure if my thinking makes sense, just thinking aloud. :winky:

I have a strong suspicion that I have Sjorgren's, though, all my tests are negative. I have all the dryness of eyes, mouth, throat and nostrils. AND I have fibronodules in my lungs. I doubt that even my neurological symptoms may also be caused by the Sjorgren's.

When you use the B12 5mg daily on an empty stomach as we do here, you bypass the need for intrinsic factor. It is passively absorbed therefore.

It seems that the gluten intolerant people may have damage to the system that utilizes intrinsic factor for transport of cobalamin from animal food source protein.

Not all people with gluten intolerance get GI inflammation.
What happens is that the leaky gut (enlarged Zonulin channels),
allow the gluten peptides to enter the blood stream where they don't belong, and they arouse antibodies against nerve tissue.
From reading the gluten sites and forums, there seem to be people who don't have the diarrhea, gas, bloating, and the converse constipation all equally.

The Celiacs with the genetic markers, seem to be intolerant of many foods and have severe GI symptoms, however. They have the most inflammation in the intestine, and hence nutrient absorption there can be reduced. This includes many vitamins
and minerals, not just B12.

If left untreated celiac disease can lead to some serious problems: Anxiety and depression... So it could be complications of untreated celiac.

Quote:

Originally Posted by Idiopathic PN (Post 868790)

Hi. I am not a regular of Celiac forum but very much a regular of PN forum.

My questions are:
1. Is it possible that one is gluten intolerant but not celiac or vice versa?
2. Could it be possible that celiac/gluten only affects the nerves and nothing else?

I have yet to take the test for Celiac disease. I don't have any of the "typical' symptoms of gluten intolerant like stomach aches, cramps, diarrhea or constipation,etc. (Or, maybe I am not just aware of anything else that is happening to my body.) But I have the typical symptoms of a PN.

Thank you for your help.