advertisement
Reply
 
Thread Tools Display Modes
Old 07-10-2012, 08:42 AM #31
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Default

Quote:
Originally Posted by glenntaj View Post
--should be able at least not only to look at what is going on in the stomach, but in the duodenum, which does contain villi and from which samples can be taken.

Sometimes, evidence of frank celiac may be found there. But, as noted, the damage to villi may be patchy, and may occur farther down the small intestine. And a standard endoscopy may not get that far down--for one thing, a different, smaller scope may need to be used.

There were a spate of recent articles referencing a study concluding underdiagnosis of celiac due to lack of sufficient villous samples taken on "standard" small intestine biopsies--here's one link to it (and it gives the original study reference):

http://www.stonehearthnewsletters.co...nored/updates/
Thank you Glenn for your reply.

Do you think that it would be wise if i request another test, not using the "deaminated", just before considering the biopsy?

I am wondering if one is celiac, can she/he still absorb nutrients? I ask this because i am taking Vit B12 (just an example) and my blood shows the max number after 3 months, which means that I absorb VitB12. I am not sure if my thinking makes sense, just thinking aloud.

I have a strong suspicion that I have Sjorgren's, though, all my tests are negative. I have all the dryness of eyes, mouth, throat and nostrils. AND I have fibronodules in my lungs. I doubt that even my neurological symptoms may also be caused by the Sjorgren's.
Idiopathic PN is offline   Reply With QuoteReply With Quote

advertisement
Old 07-10-2012, 09:12 AM #32
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

When you use the B12 5mg daily on an empty stomach as we do here, you bypass the need for intrinsic factor. It is passively absorbed therefore.

It seems that the gluten intolerant people may have damage to the system that utilizes intrinsic factor for transport of cobalamin from animal food source protein.

Not all people with gluten intolerance get GI inflammation.
What happens is that the leaky gut (enlarged Zonulin channels),
allow the gluten peptides to enter the blood stream where they don't belong, and they arouse antibodies against nerve tissue.
From reading the gluten sites and forums, there seem to be people who don't have the diarrhea, gas, bloating, and the converse constipation all equally.

The Celiacs with the genetic markers, seem to be intolerant of many foods and have severe GI symptoms, however. They have the most inflammation in the intestine, and hence nutrient absorption there can be reduced. This includes many vitamins
and minerals, not just B12.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
happyisme09 (07-10-2012), Idiopathic PN (07-10-2012)
Old 09-07-2012, 08:01 AM #33
NicolaProtts's Avatar
NicolaProtts NicolaProtts is offline
New Member
 
Join Date: Sep 2012
Location: London
Posts: 2
10 yr Member
NicolaProtts NicolaProtts is offline
New Member
NicolaProtts's Avatar
 
Join Date: Sep 2012
Location: London
Posts: 2
10 yr Member
Default

If left untreated celiac disease can lead to some serious problems: Anxiety and depression... So it could be complications of untreated celiac.



Quote:
Originally Posted by Idiopathic PN View Post
Hi. I am not a regular of Celiac forum but very much a regular of PN forum.

My questions are:
1. Is it possible that one is gluten intolerant but not celiac or vice versa?
2. Could it be possible that celiac/gluten only affects the nerves and nothing else?

I have yet to take the test for Celiac disease. I don't have any of the "typical' symptoms of gluten intolerant like stomach aches, cramps, diarrhea or constipation,etc. (Or, maybe I am not just aware of anything else that is happening to my body.) But I have the typical symptoms of a PN.


Thank you for your help.
NicolaProtts is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Celiac Disease, Gluten Intol. News cyclelops Peripheral Neuropathy 2 11-15-2010 08:18 AM
Can you have gluten sensitivity without Celiac? neurocitizen Gluten Sensitivity / Celiac Disease 30 12-11-2009 08:01 AM
celiac gluten ataxia or epilepsy???REMSSION jenD Gluten Sensitivity / Celiac Disease 6 02-25-2008 04:51 AM
CorePyschBlog on Gluten Sensitivity/Celiac Disease jccgf Gluten Sensitivity / Celiac Disease 0 08-27-2007 03:42 PM


All times are GMT -5. The time now is 02:45 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.