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04-11-2012, 11:51 AM | #1 | ||
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Hi. I am not a regular of Celiac forum but very much a regular of PN forum.
My questions are: 1. Is it possible that one is gluten intolerant but not celiac or vice versa? 2. Could it be possible that celiac/gluten only affects the nerves and nothing else? I have yet to take the test for Celiac disease. I don't have any of the "typical' symptoms of gluten intolerant like stomach aches, cramps, diarrhea or constipation,etc. (Or, maybe I am not just aware of anything else that is happening to my body.) But I have the typical symptoms of a PN. Thank you for your help. |
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04-11-2012, 01:45 PM | #2 | |||
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Wisest Elder Ever
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At the Gluten File site are papers about gluten and PN: http://sites.google.com/site/jccglut...eralneuropathy The Gluten file is also at Facebook with discussions. 2) yes possible. But you may not feel some other effects yet, if your case is mild. Some gluten effects are subtle. Brain fog, fatigue, thyroid disease, etc. I'd recommend you read The Gluten File. It is a great resource and very complete with explanations. As I understand it, the "scope" looking for villi damage does not always reveal it, even in Celiacs. Glenntaj here knows all the tests, and will hopefully come on here with details.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | PNGUY (02-08-2013) |
04-11-2012, 03:50 PM | #3 | ||
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You know Mrs.D, I blame Gabapentin for always feeling tired, difficulty concentrating and oftentimes anxious. The more I read the Gluten File, the more I wonder if I am gluten intolerant. It is difficult though to put finger to one culprit because I also h ave thyroid problem. I heard abouot gluten intolerant but I have never really given so much attention to it because I never feel the more common abdominal problem. Can colonoscopy detects the villi damage? The reason I ask is because I had colonoscopy last May 2011 and there was no mention about it. I will have my test for celiac this week. I will post the result here for comments. Thank you. Mary |
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04-11-2012, 04:28 PM | #4 | |||
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Wisest Elder Ever
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No, the villi are mostly in the small intestine.
I've read over and over at the Gluten File that a negative scope is not 100% reliable. But the damage gluten does in the sensitive person can be pretty global. Jcc's daughter had seizures as an example when young and eating gluten. They went away when she went gluten free many years ago.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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04-11-2012, 08:08 PM | #5 | ||
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I will have tests on IGg/IGa antigliadin antibodies and tissue transglutaminase. Thank you. |
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"Thanks for this!" says: | mrsD (04-12-2012) |
04-12-2012, 06:41 AM | #6 | ||
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Magnate
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--for neurological symptoms to be a presenting symptom of autoimmune reaction to gluten.
Peripheral neuropathy is one of these (gluten ataxia and seizures are others), and it is prevalent enough that the researchers who have done the work in this area (mostly Latov,Chin, Green, Fasano and Alessio in the US, and most importantly, Hadijvassiliou in Finland) recommend a test for the antibodies in anyone with an otherwise unexplained neuropathy. In fact, there is some evidence that people who present first with neurological symptoms may have a different genetic profile than the "typical" celiac who presents with gastrointestinal issues (the Gluten File details Hadijvassiliou's work in this area). There are no appreciable villi in the large intestine--was the colonoscopy otherwise unremarkable? (I just had a screening one--no polyps or inflammation found, so I'm good for five years.) The thyroid issues can make you feel tired/lethargic by themselves. There is a tendency for people with one autoimmune issue to have others, though, so if there is evidence of autoimmunity to the thyroid (with the antibody markers) that's another reason to get the gluten/celiac testing (there are numerous people with both). |
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07-09-2012, 01:21 PM | #7 | ||
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The gastro might request for an endoscopy due to some acid/burning problems...is endoscopy the same procedure used to biopsy the villi? Either gluten intolerant or celiac, will this be detected in the biopsy? If its the same procedure, I was hoping to request from the gastro a biopsy to rule out or rule in gluten or celiac. There are just so many things happening in my body now that I would want to narrow down causes. Thank you for your reply |
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07-09-2012, 01:31 PM | #8 | |||
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Wisest Elder Ever
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I believe the sampling is from the villi in the intestine.
From reading the gluten posts for years, I think even some biopsies can be negative and people still report the GF diet helps anyway. This is because the intestine is not all inflamed equally and patches may be missed. You'll have to ask the doctor, if he plans on going past the stomach into the small intestine. The scope will show if the stomach has inflammation or ulcers, etc. Glenn knows more about the testing than I do.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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07-09-2012, 01:50 PM | #9 | ||
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If the intestine is not equally inflamed, do you think it will be advantageous to do the biopsy? |
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07-09-2012, 02:18 PM | #10 | |||
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Wisest Elder Ever
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Usually they only do a biopsy if some of the blood work is iffy, or not strong.
Did you have all the blood tests already? Gluten intolerance is less likely to be positive for GI biopsy. Celiac is more severe, and there is usually a positive biopsy with them, but not 100% of the time as I have read.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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