I too am concerned about my family. None of my kids want to hear about being tested. With a grandpa, aunt, and mom with celiac, you would think they would want to make sure, but nope! It does cost a lot more to be us, yet health should be their first concern.

I was gene tested and am a Double DQ 1, which is a double dose of gluten intolerance, along with the fact that many doctors think you can't possibly be celiac unless you are DQ2 or DQ8. Me being double DQ1 means both my parents have a DQ1 gene. My dad and sister, both celiacs have never been gene tested. A very big percent of celiacs have never been gene tested. My neurologist said I suffer from sprue, my PCP at the time had no doubt whatsoever that I am celiac. Nonetheless, right or wrong, I can't have gluten or any grains. I am what I am, right???