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01-14-2014, 05:46 PM | #11 | |||
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You sure have a tough row to hoe...my heart goes out for you. What is RSD? I have a lot of sensitivites - chemicals, metals, band-aid sticky - even (now don't laugh at this....) the thread-like stitches they use to sew you up after surgery!!! My early surgical scars are WIDE! I have to have staples. Completely screwed up my Breast Lift! I'll be near Mom's Organic Market (MOM's) in a couple weeks. I'm kinda stuck in the boondocks here - not a whole lot of the specialty places nearby. Also I don't have a car, and public transportation here is lousy. I'll be sure and check out all their B & B stuff. Glad I'll be there right after I get my disability check! GF ain't cheap.... After doing some reading here, I realize I have to get new pots and pans, too!! I often wonder if I have been exposed unknowingly, because I'll have "effects". I've probably been poisoning myself every time I cook! I just bought a new cutting board, so... Thanks so much for all of you help!!!
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"Thanks for this!" says: | Lara (01-16-2014) |
01-14-2014, 08:27 PM | #12 | |||
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tissue swelling; extreme sensitivity to touch. RSD/CRPS is a malfunction of part of the nervous system. Nerves misfire, sending constant pain signals to the brain. It develops in response to an event the body regards as traumatic, such as an accident or a medical procedure. According to the McGill Pain Index, RSD is the most painful chronic disease known. I have had RSD for 23 years now. It began in my face and now I have it throughout most of my body. I am unable to work now There is a RSD/CRPS forum here that I normally post on, but happened to see your post Not laughing at you about the stitches....I have weird reactions to weird stuff too, glad I am not alone. I had my two spinal cord stimulators removed Thursday and my husband has to change my bandages daily...it is torture! I have all these red, irritated spots from the adhesive...so aggravating. You very well could be exposing yourself to gluten unknowingly. I did not go as far as getting new pots and pans when I went GF. I scrubbed them very well. But if it is something porous, it can hold the gluten...like baking stones, seasoned iron skillets, colanders. I have baking stones for GF and separate ones for my husband and they are stored separately. It is good that you got a new cutting board!! You are right, GF ain't cheap at all! Since you do not have a car and live in the boondocks, online ordering might be better! I order from Amazon all the time Hopefully you can find some stuff at MOM's! Good luck! Nanc |
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"Thanks for this!" says: | Lara (01-16-2014) |
01-15-2014, 10:19 AM | #13 | ||
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Hello, to those of you who are Celiac and/or GF intolerant,
I was diagnosed as having Celiac Disease almost 3 years ago...which was what they called "latent" since my many tests during other problems never showed that in my blood work or even a biopsy given of my liver, or the biopsy of my gall bladder that was removed. Needless to say, the medical testing for us is still in the process of "getting a better control". The important part is how "you" are feeling, your own personal assessment between you and your Dr. Everyone who is a Celiac does not have the same symptoms...there are over 100 types of symptoms in the real world. And of course there is the GF intolerance, which is more typically symptomatic in its own right. I am a member of a great Celiac site which has so much information concerning this disease. It is called Celiac.com and has a great deal of inforamtion especially for those first few months of going GF. Remember that no question or problem you are having is ever considered "insignificant"....this is something I am learning and dealing with my Dr's on a better communication. Blessings in your desire to feel better and live well. Joanie |
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"Thanks for this!" says: | Lara (01-16-2014) |
01-23-2014, 04:49 PM | #14 | |||
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I am pretty careful about what I eat, and, yes! it's ridiculous all what contains gluten! Mostly I eat meat (local, organic and not grain-fed) and veggies and fruit, nuts, seeds, etc. I try to include flax, chia and hemp in most things I prepare. I have GF bread in the freezer, but don't eat much of it. I would be in bad shape if I was allergic to shea! My son-in-law is from Ghana, where they make it, and they often give me a few pounds of it. I make my soap with it, and use it as a body moisturizer. My skin is so dry, it drinks it right up.
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"Thanks for this!" says: | Nanc (01-23-2014) |
01-23-2014, 05:38 PM | #15 | |||
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It is good you are careful about what you eat and that you can eat veggies, fruits, nuts, etc. Unfortunately, I cannot eat much in the way of fruits and veggies and no nuts. I have interstitial cystitis (painful bladder syndrome) and cannot eat that stuff. So, in addition to avoiding gluten, I have a huge list of foods to avoid because of IC...too complicated. It is awesome that you get all that shea and can make your own soap! I was at a women's show and there was a booth there that had pure shea, I broke out from it It makes me mad because it is in so much stuff! |
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01-23-2014, 07:19 PM | #16 | |||
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Well, hopefully they will not make me give up chocolate!!! I could live on that..
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"Thanks for this!" says: | Nanc (01-23-2014) |
01-23-2014, 08:12 PM | #17 | |||
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01-23-2014, 11:03 PM | #18 | |||
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Seriously, though - I can't imagine going through all you do and maintaining my sanity. God, what a pity party I would have - constantly! People didn't used to have all these complicated allergy/immune problems. I think modern life and all we are exposed to is making people (and animals, and bugs....) sick. Not to mention GMO foods. I have so many chemical and metal sensitivities. If I smell certain odors, my windpipe starts closing up. Eliminating gluten has drastically improved my health, but my thyroid is not right. I will be tested for antibodies in a week or so, and hopefully begin a better medication therapy. I just raised heck in a letter to the hospital director where I get my care, as I have had thyroid problems for years, but the minimal testing they do shows fine. In August (after suffering for 40+ years) they tested Free T4 and Free T3. Both are in the basement. What do you know......I do have a problem..... I'll keep you in my prayers, maybe they'll help get you feeling better. I sure hope so. Take good care of you.
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"Thanks for this!" says: | Nanc (01-23-2014) |
01-23-2014, 11:39 PM | #19 | |||
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Did you get tested for the metal and chemical sensitivities? I had allergy testing numerous times with allergists, but they only test environmental and foods. The dermatologist tested some other things and found an ingredient in creams or cosmetics that I reacted to (urea). I think I have other sensitivities/allergies but don't know how to find out. Elliminating gluten definitely has improved things for me too. How do I stay sane?? I have no idea...lol. My husband is really a gift. He helps me make it thru everyday. I had to stop working in Dec 2012, I receive disability now. It was the hardest thing for me to do, but I just couldn't handle it any longer. I had to stop and take care of myself for a change. Always put myself last. Glad you fought about the testing. Wow, it is unbeleivable to be having problems that long and not get tested properly. I never heard of free T3 & T4, had to look it up. Glad you don't have to give up chocolate...whew! Hope you can get a handle on your thyroid soon! Thanks for the prayers, will take all I can get Sending some back your way. Take care, Nanc |
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01-24-2014, 10:33 PM | #20 | |||
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I'm a veteran and get care at the VA. They won't do allergy testing. I am having a fight with them about getting the tests I need for my thyroid. If you don't fit precisely into one of their normal little boxes, they don't want to help you. In the past 6 months, I have learned so much about it, and unfortunately, I now know more about my problem than my Endo. doc does! That's sad..... Well, Girl, I gotta go to bed....Hope you have a good night.
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"Thanks for this!" says: | Nanc (01-24-2014) |
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