Geeze, Nanc - How in the world can you get all your nutrients?? This is awful- foods making us sick. I am now researching foods to avoid if you have thyroid problems (I do). Crap, crap - more goodies I have to give up.
Well, hopefully they will not make me give up chocolate!!! I could live on that..

That is a good question...I am so deficient in potassium, vitamins D & B12. I take D3 drops and get monthly B12 injections. Because most food makes me sick, potatoes were like my safe food. Well, I have to avoid them now because of my bladder. Also can't have chocolate (argh!) and tea...I love iced tea Hopefully you can keep your chocolate!!

Good Lord! You can't eat anything "healthy" for you. Will this ever get better for you? I sure hope so. I was deficient in B12...got shots for several months, then oral. I went gluten free and now B12 is soaring. That was part of this puzzle for me. Now tackling my whacked thyroid. I don't think chocolate affects that..hehe.

Seriously, though - I can't imagine going through all you do and maintaining my sanity. God, what a pity party I would have - constantly! People didn't used to have all these complicated allergy/immune problems. I think modern life and all we are exposed to is making people (and animals, and bugs....) sick. Not to mention GMO foods. I have so many chemical and metal sensitivities. If I smell certain odors, my windpipe starts closing up.

Eliminating gluten has drastically improved my health, but my thyroid is not right. I will be tested for antibodies in a week or so, and hopefully begin a better medication therapy. I just raised heck in a letter to the hospital director where I get my care, as I have had thyroid problems for years, but the minimal testing they do shows fine. In August (after suffering for 40+ years) they tested Free T4 and Free T3. Both are in the basement. What do you know......I do have a problem.....

I'll keep you in my prayers, maybe they'll help get you feeling better. I sure hope so. Take good care of you.

Well, once I eliminate all the high oxalate foods and the "avoid" foods on the IC diet for a while, I can reintroduce foods one and a time. I have to figure out which are my trigger foods and which do not trigger pain. I am just startting the process. It is very complicated because some foods that are safe on the IC diet contain high oxalates...they contradict each other. So, hopefully eliminating everything will not be permanent. I have gastroparesis (slow digestion) which is common in folks with RSD. I cannot tolerate some of the safe foods on both low oxalate and IC diet lists....like certain apples and bananas. SOOOO FRUSTRATING!! I am allergic to pork, shellfish and some fishes (my throat closes). Because of the pork allergy, there are so many meds and supplements that I cannot take (no gelatin). My mom says that I get all the allergies from dad's side of the family. He and his mom had so many allergies...crazy! It does amaze me how people nowadays have so many issues. It is truly insane!

Did you get tested for the metal and chemical sensitivities? I had allergy testing numerous times with allergists, but they only test environmental and foods. The dermatologist tested some other things and found an ingredient in creams or cosmetics that I reacted to (urea). I think I have other sensitivities/allergies but don't know how to find out.

Elliminating gluten definitely has improved things for me too. How do I stay sane?? I have no idea...lol. My husband is really a gift. He helps me make it thru everyday. I had to stop working in Dec 2012, I receive disability now. It was the hardest thing for me to do, but I just couldn't handle it any longer. I had to stop and take care of myself for a change. Always put myself last.

Glad you fought about the testing. Wow, it is unbeleivable to be having problems that long and not get tested properly. I never heard of free T3 & T4, had to look it up. Glad you don't have to give up chocolate...whew! Hope you can get a handle on your thyroid soon!

Thanks for the prayers, will take all I can get Sending some back your way. Take care, Nanc

I'm glad you will be able to start adding things back in to your food list. That is just WAY too complicated for me! I haven't investigated if any other foods bother me. I would say that nothing seems to bother me, but I didn't know gluten bothered me till I gave it up and noticed the HUGE difference it made in my energy, sleep, pain and stiffness. I may have to give up some foods for my thyroid - we'll see after I get all these tests run.

I'm a veteran and get care at the VA. They won't do allergy testing.

I am having a fight with them about getting the tests I need for my thyroid. If you don't fit precisely into one of their normal little boxes, they don't want to help you. In the past 6 months, I have learned so much about it, and unfortunately, I now know more about my problem than my Endo. doc does! That's sad.....

Well, Girl, I gotta go to bed....Hope you have a good night.

My Dad goes to the VA also. It is great to get his check-ups and stuff, but such a hassle sometimes. He has many issues and it gets complicated. It amazes me how doctors are...I often see drs and have to educate them on RSD/CRPS. It is sad, but good that you are educating yourself.

I need to hit the hay also. Hope you have a good night too

It's easier if you are Celiac because many people don't respect Gluten sensitivity as an illness.
I tell people I am Celiac, its easier that way.