I posted over on BT a new thread, but here's the basics --
days shy of 4 wks on gluten
went to FP doc for his regular check up
since 5/9 to 6/20 my almost 5mo old has not gained any weight and had a height increase of 1/2 inch (possibly, those lay down charts are not all that accurate with a squirmy baby).
My gluten eating started May 25th. So he had many days in May of GF breastmilk, in retrospect he is probably loosing weight.
The FP doc was a bit alarmed and has me coming back in 1 month for a reweigh in, so I'll know before my appt w Dr. Fasano exactly what his weight has done.
Funny, Dr. F's office sent my FP doc a note stating ds3 did not have celiac symptoms I don't even need to dwell on that one, no one, not even the "experts" want to dx Celiacs.

The problem is that they are going by medically defined standards. The current definition for Celiac is damaged villi. If I remember correctly Fasano is a "traditionalist". I don't know if he views Non Celiac Gluten Sensitivity as valid. If you were to see the likes of Dr. Fine, Dr. Scot Lewey, Dr. Rodney Ford - they might give you the dx you're searching for.