Well, I haven't been on the GS / CD forum very long. (Sorry Al, I didn't realize you weren't there as often. I have enjoyed your posting and I liked the "Roll Call" well enough to start it up over on Child Neuro.) I did a little bit of lurking on a few other forums while waiting for BT to come back to life. I probably should have looked harder. My main complaint with the other forums I visited was with the "celiac" obsession. My family is nowhere near "celiac." (And that one woman who kept posting that her dad has celiac and her daughter does too, but she keeps testing negative so she's happy to keep pulling the trigger until blood tests are otherwise.... Okay, she wasn't really posting the part about Russian Roulette, but she drove me up the wall everytime she mentioned her dad and daughter and that she tests negative.)

I did feel bad about Monica. I felt the one post was over the line, but she should have been judged based on all of her past postings and given a warning on that one. The only other banned poster I'm familiar with always kind of struck me as a rebel rouser, and while I did enjoy her postings (wondering how she was going to put her foot in her mouth this time), I wasn't surprised when she was finally banned.

I've also enjoyed BrainTalk for the other forums - kind of a one-stop-shopping. I really like the Child Neuro group. As I said to one of the other moms in an email, we're a bunch of misfits. Not just epilepsy, not just cerebral palsy, not just autism.... and lots of "we don't know what's wrong." And, it was nice to be able to cross-post a seizure question on the Epilepsy forum as well as Child Neuro. Others cross-posted with hydrocephaly / cerebral palsy, etc. I guess I don't like having to join twenty different forums.

Anyway, if you do end up finding a home somewhere else, I'd like to know where, so I know where I can go when the issue is more than celiac.

I guess I should also add that I NEVER looked under Forum Feedback or any of the other "General Subjects" forums on BT. I didn't realize there was so much anger and frustration at John Lester and the moderators. I never was a "big picture" person.

I can't believe the time it has taken me to connect. In the interim, I would have appreciated access to the gluten file to help me solve why my son at 14 has gone to 6.8 hemeglobin. I have learned so much and there are so many cultural differences that nobody believes in France that it could believe that it could be gluten anemia. Do the moderators have the right to play the big managers?????? I miss you all

Kathy, I pretty much agree with everything you say. I hope BT comes back... but I feel like I am holding my breath and I don't what I'm going to do when I pass out. I've tried to mind my own business on BT and stick to on topic purposes, and tried never to get too involved in the goings ons (although I've probably been drawn in a bit more than you have...still, I liked to ignore those things).

Cara

Hi Claire :-)

It's nice to be missed...

Grace

Hi Claire,

Thanks for the reminder on this. Sure, I'll do it. It's always good to have a way to connect back up.

There other thing we've used in the past is Kim's Yahoo Message Group. Many of us here head there if there's problems connecting to the board.

Those that are interested, just PM me with your email address and whether or not you want me to share your addy with other BT members if the need arises.


Thanks Kim, I appreciate your honesty. However, sometimes I need "nagging"...just ask Peg! heheehe [we need to ask DocJohn about up'ing our image count - 5 is just not enough!!] I have missed seeing you too. Hey...how's Ben doing?