with celiac disease, how common is it to have tingling in hands & feet & numbness in hands & feet? I have other symtoms of celiac also (gas is the worst syptom I have it 24/7 also have bloating & some pain in the intestines). I have not been able to figure out what is wrong with me. I have had a colonoscopy (nothing showed up) & tried many medications for treating the gas problem (nothing works). I will get my tests back telling me whether I have celiac disease on Thursday. but I just wanted to ask how common the syptoms I have are, b/c I haven't heard of anyone w/celiac who had the numbness or tingling problem. Have actually had the numbess/tingling since I was 12 (10 yrs) but only had the constant gas problem 2 1/2 yrs. Please someone help me out, thanks.

Beth, truthfully, it is very common for those who are celiac/gluten intolerant, especially before going gluten free to have the tingling and numbness. MAny find it does repair itself once gluten free for a time. Even if your tests comes back negative, DO NOT give up. Many celiac's get false positives. A gluten free diet can not hurt you, it is really quite healthy.

Good luck with your test and I hope you feel better soon.

how come the tests come up negative for some? can you explain this to me?

Someone much smarter than me will have to come along and explain that to you! I'm not even sure if doctor's know why. When it's an endoscopy test, usually it comes back false negative because either the doctor didn't take enough samples or just didn't actually find the correct spot to test. I do know that many people have gone gluten free that had false negatives and feel so much better being gluten free.

For what it's worth, I had both 24/7 gas and extreme abdominal bloating and the tingling toes. After DNA testing for the celiac genes which I did not have, I have since concluded that my problem is a sensitivity to wheat. Barley doesn't seem to bother me, so I doubt if I have a celiac problem. The gas and bloating went away within a few days of being gluten free, and the tingling toes finally went mostly away after about 18 months of GF. So even if your celiac tests come back negative, you still may have a wheat sensitivity. Wheat is one of the most common food sensitivities. And as darlindeb25 has already said, the GF diet is very healthy even if a bit inconvenient at times. I've now been GF for 2 years.

Tingling can occur due to malabsorption of many things. The number one thing people seem to talk about is B12.

I've noticed that if I supplement magnesium mine will stop. There are other possibilities too.

Tests can turn up negative for many, many reasons:
Here's a good article:
http://f1.grp.yahoofs.com/v1/sMuXRgV...tion%20Ever%21