with celiac disease, how common is it to have tingling in hands & feet & numbness in hands & feet? I have other symtoms of celiac also (gas is the worst syptom I have it 24/7 also have bloating & some pain in the intestines). I have not been able to figure out what is wrong with me. I have had a colonoscopy (nothing showed up) & tried many medications for treating the gas problem (nothing works). I will get my tests back telling me whether I have celiac disease on Thursday. but I just wanted to ask how common the syptoms I have are, b/c I haven't heard of anyone w/celiac who had the numbness or tingling problem. Have actually had the numbess/tingling since I was 12 (10 yrs) but only had the constant gas problem 2 1/2 yrs. Please someone help me out, thanks.

Beth, truthfully, it is very common for those who are celiac/gluten intolerant, especially before going gluten free to have the tingling and numbness. MAny find it does repair itself once gluten free for a time. Even if your tests comes back negative, DO NOT give up. Many celiac's get false positives. A gluten free diet can not hurt you, it is really quite healthy.

Good luck with your test and I hope you feel better soon.

how come the tests come up negative for some? can you explain this to me?

Someone much smarter than me will have to come along and explain that to you! I'm not even sure if doctor's know why. When it's an endoscopy test, usually it comes back false negative because either the doctor didn't take enough samples or just didn't actually find the correct spot to test. I do know that many people have gone gluten free that had false negatives and feel so much better being gluten free.

For what it's worth, I had both 24/7 gas and extreme abdominal bloating and the tingling toes. After DNA testing for the celiac genes which I did not have, I have since concluded that my problem is a sensitivity to wheat. Barley doesn't seem to bother me, so I doubt if I have a celiac problem. The gas and bloating went away within a few days of being gluten free, and the tingling toes finally went mostly away after about 18 months of GF. So even if your celiac tests come back negative, you still may have a wheat sensitivity. Wheat is one of the most common food sensitivities. And as darlindeb25 has already said, the GF diet is very healthy even if a bit inconvenient at times. I've now been GF for 2 years.

Tingling can occur due to malabsorption of many things. The number one thing people seem to talk about is B12.

I've noticed that if I supplement magnesium mine will stop. There are other possibilities too.

Tests can turn up negative for many, many reasons:
Here's a good article:
http://f1.grp.yahoofs.com/v1/sMuXRgV...tion%20Ever%21

I did a page on magnesium after I read the material that caused me to write this:

Now, when I take my magnesium capsules, I take them with either vitamin C or Hydrochloric acid. (But I don't know if it's all right for people with celiac to take either Vitamin C or hydrochloric acid...)

Here's my page on magnesium:
http://www.health-boundaries-bite.co...Magnesium.html

and here's a page of mine on "pins and needles" that I just found (I forget what I have on my site... I have a bit of brain damage)
http://www.health-boundaries-bite.co...d-Needles.html

.

Those are great links... thanks!!

Yes, many people who have food sensitivities (i.e. gluten sensitivity) do experience malabsorption if they continue to eat the foods that they are sensitive to. That intestinal damage can sometimes be corrected very quickly and sometimes very slowly... The 'cascading symptoms' like anemia etc. can take a short period to get 'caught up' or a long time... it all depends on the person, the amount of damage, how strict they become with their diet, if they allocate all the foods that they are sensitive to... etc.

And yes, there can also be stomach acid issues that take time to correct (either too little or too much).

Some people may have sensitivities to either one... it's an individual thing more than a celiac or gluten sensitivity thing.

You've really hit the nail on the head for c.d. and g.s. many, many times in your post.

I really enjoyed the explanations at your site. It's all very well put and loads of information for people to mull over.

Awesome!!

Came back to edit: (Have you considered the possibility of having gluten sensitivity issues?)

Hi KimS,

Yes, for sure. FOR SURE! (re gluten sensitivity issues)

But no doctor has ever suggested it.

The thing was, when I went to eating brown rice and no more bread or potatoes, etc... I stopped having the diarrhea I'd had for YEARS and which the doctor had told me to just get used to because it was something you had to live with if you had B12 deficiency.


I have such a bad memory... (it's actually a bit scary to me)

but I think that I saw in Cara's file a picture of some skin eruptions that are or can be related to Celiac.

and they made me think of my son who is terrified of the skin problem he has that he has been thinking is exzema.

I'm going to write him with some of this information.


Thank you all so much!

And thank you for the kind words about my site.

(I've put huge work into it, and it all seems worth it when it's useful to people.)

I see that link above isn't working for the explanation of testing.


Here is another link to this group who has the article stored in their files for reading: http://ca.groups.yahoo.com/group/can...iles/Research/