Hello,

I have been going to the websites I have found on this site. I really liked the "Crying Over Spilt Milk". Anyone here have kids with multiple food allergies like milk, wheat/gluten, corn, peanuts, and eggs? I am finding it challenging to find food without all five of these ingredients. I did find rice chex for cereal. But wonder since Joshua has such a strong reaction to grasses if this will affect him too. So far, we don't know what IGE reactions he is having to the foods, since we don't usually see any outward allergic signs. Can IGG reactions impact as IGE reactions but not show up as an immediate reaction? I do now notice that his ears do change red when he ate a food at school with one of these ingredients. I just got the doctor's script for eliminating the foods. How does one get the school to make lunches free of these foods. My son is on an IEP and is in the Level 3 placement. It will be really interesting when they go to McDonalds and other places and get lunches there. Is there any fast food places that anyone can recommend to be free of these foods on some of their menu items?

I will also look into some of the recommendations on the can't breath...website. I hope some of these will help Kayla, since she has many of the symptoms listed there. We have been using Soy milk in place of dairy. But, I know the school isn't following this diet. Our doctor wouldn't write a script but referred us to the allergist to do it instead. So, I will call them tomorrow to see if they will do it. I Hope. Any ideas of lunches for school which do not have to be refigerated or cooked. This is our schools regulations... Which I think will be difficult to do.

Also, does anyone know of any financial programs that will assist in paying for the speciality foods since they can be expensive when you are putting your whole family on them. My oldest son also came back milk, egg, and wheat allergy. Are there foods you can make that do not need special ingredients, like snack foods minus (wheat, corn, peanuts, milk, eggs).

Thanks

Diana

Rice Chex has barley. If you are trying to be gluten free, barley needs to be eliminated too. There is an alternative to the Chex cereals and that is Health Valley Rice Crunch-ums. They are not made in a dedicated facility but do not have any gluten ingredients.

Barley is a sneaky ingredient - I have been fooled more than once by barley. It is not in the top 8 allergens so it does not have to be in the allergen statement. It is often hidden as "malt".

The only place I know of that helps people with the cost of the GF diet is the UK. From what I understand, if you are diagnosed by biopsy, then the food is a prescription. I don't know of a program in the US. Most insurances will not even pay for a consult with a dietitian The medical community does not see the heal qualities of food.

Too tired right now to post links to fast food places. Many of them will have info on GF selections. This may help you for McD's http://www.mcdonalds.com/app_control...nts.index.html

Anne

Hi Diana,

I found this website to give a good explanation of IgE, IgG, and IgA:

Diet Net

I recently did some IgG testing myself. I cut out both the moderate and mild categories of food I was reacting to and felt better. If you have been cutting out casein, then the IgG for that won't show up anymore as your body will stop producing antibodies to it. Currently, I'm not eating gluten, corn, dairy, soy, nuts & seeds. It's a long list, and I pretty much have to cook everything myself rather than relying on processed or restaurant foods. Eating out if very difficult for me.

There are other groups of parents who have kids with lots of special needs like yours. Here's an interesting website from a mother of a child who is autistic:

Dana's View from the Inside

You might also find the yahoo groups on "enzymesandautism" interesting. Here's Karen DeFelice's website on digestive enzymes.

From what I gather, it's a lot of figuring out what works for you kids. I don't think you can depend on the doctors figuring it all out for you and testing isn't perfect.

Claire

Darn...I just accidentally backed out of this and lost my post. I'll give it another quick go.

Meanwhile..may I suggest a new post titled something like this to draw out some more responses.

wheat, corn, peanuts, milk, eggs free- HELP!

I was also going to suggest vising the Child Neurology board..as I think some of them are very well educated about the ins and outs of IEP's in the school, perhaps not in regard to food, but in general some really know the law.

I do believe the school has to provide for your child if you have a doctor's script, but I think most of us feel we wouldn't really trust the school to provide safe food...so just send our own lunches and keep snacks/treats available. I think you would just need to be very involved to make sure they get it right!

I thought that one can save receipts and deduct the food expenses as a medical cost, but I'm not sure many do it. I've heard the hassle isn't worth it, but maybe someone else here knows differently. [oops...maybe in UK or Canada???? I don't of anybody personally who does this]

I think others here will be able to help with snack ideas, too. Here are some recipe sites... I think the Paleo recipes might fit most of what you need, and the GF/CF ideas will be a good start, and then just watch out for the other problem foods.

Paleo Diet Recipes
Gluten Challenge :: Gluten, Dairy, Soy free Menu, Lunches and Snacks Plans!
Recipes4US - UK - Special Diets
GFUtah GFCF Recipes
GF/CF Recipe Forum

You might be able to find some info about handling schools here, too. It looks like they have some info.
The Food Allergy & Anaphylaxis Network (FAAN)


But..make a new post about help with dietary restrictions. I know Judylv's son has many restrictions, and others here as well.

Cara

Just wanted to Thank all of you for all the great responses and websites. I know these will be keeping me busy for a while. I have talked to my son's nurse and she said they would let us use the frid. and microwave in his room. She said since they have a kitchen that it would not be like my daughter's school. That will be another issue. We discussed the lunches and decided it would be safer and easier to bring his lunches.

Are any of you familiar with DAN Doctors? I was surprised the one we saw told us to disregard the IGG results for all of our kids and some of the IGE results for Joshua (Wheat and corn due to cross reactivity). I have found alot of research that says some individuals will react to these foods when there is pollen involved. Even, our ped. told us to eliminate the IGE foods.

Grasses and Ragweed seem to be an issue at school. They are questioning whether to not expose him to field trips like the park or nature center due to his high grass and moderate ragweed allergies. What we have noticed is only the asthma reaction, and lately red ears at times. But not other reactions, except possibly chronic fatigue. Does anyone know if there can be intolerance reactions that occur during IGE allergic reactions?

I noticed some of you had children with reflux. Are there specific foods that you noticed that caused the reflux in your children. We have read that milk and wheat are many times culprets. We have been on the dairy free diet about a month, but have heard that the school hasn't been doing it all the time. Kayla also has PICA and picking skin behaviors. She also has Tourettes, at times very severe. Do any of your children happen to have/had these behaviors and did you find certain foods helped with any of these? Also, Joshua has hypersensitivitiy to loud noices.

We have been told that one can get food stamps through medicaid to pay for the special foods since it is a medical problem. We will check into this tomorrow. The nurse told us this. Anyone, else hear about this?

Thanks

Diana

Here are a couple of essays that may help. They were written by Dr. Lewey who is a board certified GI doc.

The first is about cross reaction between pollen allergies and food allergies: http://ezinearticles.com/?Food-Aller...lens&id=306107

This next essay is about heartburn/reflux and CD/GS. What is interesting is that Dr. Lewey mentions that he was diagnosed as gluten sensitive through Enterolab and is now GF.
http://ezinearticles.com/?Heartburn-...flux&id=315638

I hope the help with the expense of the food works out.
Anne

I saw a DAN! doctor for my daughter, and he suggested food allergy testing through Sage Labs, and because she had positive antigliadin IgG antibodies suggested a gluten free diet...and then anything else she would have tested positive too. She turned 18 and didn't want any more testing.

We also consulted with another DAN! doctor about pyroluria, a condition my daughter tested positive, too. Actually, I learned about pyroluria on Braintalk from a woman named FJ, whose son's had TS among other things, all responding very well to treatment for pyroluria. In your spare time , you might want to read about that. There is a page for it in The Gluten File, or you can google it. Try googling it with "FJ" and you might find some her posts. Also, there are a small number or TS patients who respond to dietary changes.

I've heard PICA can be related to iron deficiency. THat has been checked?

Cara

Here is another way to treat reflux.
Anne

http://www.ncbi.nlm.nih.gov/entrez/q...=pubmed_DocSum

Wow - it's no too often you find 100% in these studies. Very interesting...

Anne, I missed this when you posted it! It is going in the file! I've said many times that my GERD mostly cleared up when fixing my B12 deficiency, and I also began supplementing with a multivitamin, magnesium, P5P, and fish oil at that time. I know GI symptoms are associated with B12 deficiency.

I had further GI improvement when I dumped gluten from my diet, with my stools returning to normal (no intermittent diarrhea, blood in stool).

Cara