advertisement
Reply
 
Thread Tools Display Modes
Old 11-02-2007, 06:34 PM #11
borst borst is offline
Junior Member
 
Join Date: Nov 2007
Posts: 10
15 yr Member
borst borst is offline
Junior Member
 
Join Date: Nov 2007
Posts: 10
15 yr Member
Default

Quote:
Originally Posted by glenntaj View Post
--for high serum electrolytes, but here are many others, perhaps related to gluten and perhaps not.

First thing to check might be whether the test stood around too long--often, there is leakage of potassium/magnesium from ruptured blood cells into serum--the more time, the greater the leakage--and this skews the measured results. (The more accurate test, especially for potassium, is to measure pure plasma originally.) Also, high blood acids such as are found in diabetes and kidney dyfunction can produce elevated levels. And many medications play havoc with these ions.

But, your results are not WAY out of range--they're close enough to the reference range so that the tests should in all likelihood be repeated. A 24-hour urine test, to see how your kidneys are handling things, would probably also be a good idea.

The supplements seem innocent enough--though I was not ble to determine the form of the B12 or the other B's form the links (most of us like the easier to metabolize methylcobalamin B12 rather than the cyanocobalamin in most commercial preparations, and the P-5-P coenzymated form of B6 rather than straight pyridoxine).

Where are you currently being treated (e.g., where were the tests ordered from, and through)?
Thanks for the reply,
the B12 strips are from methylcobalamin B12, but i think the the B6 in the B50 complex is pyridoxine.

I'm in Ottawa, Ontario, Canada.. the tests were done at this lab
http://www.gamma-dynacare.com/

When i got the bloodwork done, they told me the celiac panel is sent somewhere else to be tested, not sure where, but thats the reason they gave for it taking longer than the other blood tests.
borst is offline   Reply With QuoteReply With Quote

advertisement
Old 11-03-2007, 08:32 AM #12
borst borst is offline
Junior Member
 
Join Date: Nov 2007
Posts: 10
15 yr Member
borst borst is offline
Junior Member
 
Join Date: Nov 2007
Posts: 10
15 yr Member
Default

Hmm just checked the ingredients on the b12 strips and it contains modified starch, guess i'll have to find a new one...

Yep, i decided to take the GF plunge.. started off last night with a gluten-free pizza from a local pizzeria. I know, not the most healthiest choice to start off with, but it was more symbolic than anything i guess.

will try and keep a food diary and see how i respond

thanks again
borst is offline   Reply With QuoteReply With Quote
Old 11-03-2007, 11:42 AM #13
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
Default

Good luck! There is quite a learning curve to a gluten free diet, because gluten lurks in places you might never suspect. If you look through the Favorite Links page in The Gluten File you will find some 'Safe Food Lists" that are kept by other forums or celiac support groups. A gluten free diet needs to be 100% strict to work, and that can be a learning process.

I've ordered my supplements from many different online stores and have had good luck with all of them. I've tried just about every methylcobalamin brand on the market, and while I don't have a great preference, I usually buy Jarrow Brand.
http://www.iherb.com/Search.aspx?c=1&kw=methylcobalamin

Jarrow also has a B-complex that uses P5P form of B6 called B-Right. So does Country Life~ http://www.iherb.com/ProductDetails....&pid=1760&at=0


Good luck to you . Keeping a food diary is a good idea. Keep in mind that 50% of those with celiac disease or gluten sensitivity also have casein sensitivity (cow's milk protein). It can be a process to rid yourself of GI symptoms, but getting rid of gluten is a good first step! I hope you see some improvements quickly, because that can be very motivating.

Cara
__________________

.
jccgf is offline   Reply With QuoteReply With Quote
Old 11-03-2007, 03:19 PM #14
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
jccgf jccgf is offline
Senior Member (jccglutenfree)
 
Join Date: Aug 2006
Location: Wisconsin
Posts: 1,581
15 yr Member
Default

Have you read about the Specific Carbohydrate Diet that treats IBD, IBS, Celiac Disease and other digestive problems? It is gluten free, but there are other restrictions as well. I don't know that much about it because I've never used it, but if you google Specific Carbohydrate Diet you will find an endless number of websites, forums, etc, devoted to the topic.
http://www.breakingtheviciouscycle.i.../beginners.htm
http://www.medscape.com/viewarticle/553039_6

You might also check out these pages of The Gluten File:
IBS, IBD, Crohn's
H.Pylori,Colitis, Gastritis
Not Celiac?


While there is no guarantee that a gluten free diet will eliminate all of your symptoms, there is a good chance it will. You may need to remove other foods, too. And, there are reports of Crohn's, IBD, etc, improving after eliminating wheat and sometimes other foods.

You could still follow up with a GI in the event they want to do any further testing. It has been two years since your sigmoidoscopy and imaging scans were found to be normal. Maybe something has changed.

Quote:
- GI specialist in May 2005, underwent sigmoidoscopy, looked normal. Doctor suggested bleeding likely due to fissure. Did not address other gastro. concerns. Seemed dismissive
- Went back to family doctor who decided to order Lower GI series; result: colon was imaged well, and looked normal.
If you are going to follow up with a GI, you might as well keep eating gluten and get that biopsy done. I do think there is a chance that an endoscopy could be positive for celiac disease. Based on the statistics of blood testing, it is better than a 50% chance. [UGH... if you really have to WAIT months for a first appointment, and longer still to schedule a biopsy... that is criminal. Makes me swing back to thinking you should just starting the diet! ]

But, if a celiac biopsy is negative, and they find nothing else... I would definitely move forward with a gluten free diet, possibly SCD.

If you decide to stick with the diet now, you could still follow up with a GI to make sure there is nothing ELSE is going on, but you'd close the door on celiac testing.


Tough Decisions! The unintended weight loss is worrisome. What did your new physician recommend you do? Did he recommend a follow up with the GI? IF so, you should probably follow through with that.
__________________

.

Last edited by jccgf; 11-03-2007 at 04:24 PM.
jccgf is offline   Reply With QuoteReply With Quote
Old 11-05-2007, 06:31 PM #15
borst borst is offline
Junior Member
 
Join Date: Nov 2007
Posts: 10
15 yr Member
borst borst is offline
Junior Member
 
Join Date: Nov 2007
Posts: 10
15 yr Member
Default

Quote:
Originally Posted by jccglutenfree View Post
Have you read about the Specific Carbohydrate Diet that treats IBD, IBS, Celiac Disease and other digestive problems? It is gluten free, but there are other restrictions as well. I don't know that much about it because I've never used it, but if you google Specific Carbohydrate Diet you will find an endless number of websites, forums, etc, devoted to the topic.
http://www.breakingtheviciouscycle.i.../beginners.htm
http://www.medscape.com/viewarticle/553039_6

You might also check out these pages of The Gluten File:
IBS, IBD, Crohn's
H.Pylori,Colitis, Gastritis
Not Celiac?


While there is no guarantee that a gluten free diet will eliminate all of your symptoms, there is a good chance it will. You may need to remove other foods, too. And, there are reports of Crohn's, IBD, etc, improving after eliminating wheat and sometimes other foods.

You could still follow up with a GI in the event they want to do any further testing. It has been two years since your sigmoidoscopy and imaging scans were found to be normal. Maybe something has changed.



If you are going to follow up with a GI, you might as well keep eating gluten and get that biopsy done. I do think there is a chance that an endoscopy could be positive for celiac disease. Based on the statistics of blood testing, it is better than a 50% chance. [UGH... if you really have to WAIT months for a first appointment, and longer still to schedule a biopsy... that is criminal. Makes me swing back to thinking you should just starting the diet! ]

But, if a celiac biopsy is negative, and they find nothing else... I would definitely move forward with a gluten free diet, possibly SCD.

If you decide to stick with the diet now, you could still follow up with a GI to make sure there is nothing ELSE is going on, but you'd close the door on celiac testing.


Tough Decisions! The unintended weight loss is worrisome. What did your new physician recommend you do? Did he recommend a follow up with the GI? IF so, you should probably follow through with that.
My new physician suggested i could try to go gluten-free, although i question her knowledge about it because all she said was, "try and cut back on the gluten". Yes she was the one who referred me to the GI.

I've been gluten free for a few days now and on a new b12 supplement. I just realized i was taking the other one totally wrong... it was in strip form and instead of under the tongue i had put them on the top of my tongue
borst is offline   Reply With QuoteReply With Quote
Old 11-13-2007, 03:39 PM #16
northernlights northernlights is offline
Junior Member
 
Join Date: Feb 2007
Location: Norway Europe
Posts: 51
15 yr Member
northernlights northernlights is offline
Junior Member
 
Join Date: Feb 2007
Location: Norway Europe
Posts: 51
15 yr Member
Default

Hi, about the b-12 ranges, they look like ours here in this part of Europe . we use mols a lot in lab ranges but in the us they use grams, so lab ranges may differ. In canada, they often use mols too.
nora
northernlights is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Celiac Neuropathy Endicott New Member Introductions 5 10-23-2014 12:53 AM
Celiac Disease mimicking ALS jccgf ALS News & Research 2 10-10-2007 07:40 AM
Cookware for Celiac terryahm New Member Introductions 2 09-09-2007 12:30 AM
Does this sound like Celiac Disease? Daisy Gluten Sensitivity / Celiac Disease 8 10-12-2006 11:46 AM


All times are GMT -5. The time now is 01:31 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.