update
 

I managed to find out some about the up coming scoping. Apparently I see the GI before they do the test. He probably will preform a biopsy.
The dr I seen today was yet another very confused dr. He told me that we could resolve the issue, all I had to do was eat wheat for a week and then have the test done again. :mad: I told him that he was wrong, its not that simply, and I couldn't believe that he would ask me to do something like that.

I also found out that I would not be able to see a diettian unless I had a confirmed test result saying I was celiac. I don't understand how that can be, I ask about gluten sensitive and he said that your on your own. Our province's medical system really is something!!!:eek:

I did get him to send me on to a immuneoligist/allergist, I practically had to beg for that, I hope that maybe this person will be able to solve other food allergys.

It just amazes me that I would know more about gluten and other food allergys than the dr. Really is sad actually, Patricia :)

Update
 

Well I went and seen the immunoligist/allergist yesterday. Seems that I have no allergies.
I had the scratch test done for grain allergys as well as milk, they all were negative. :D
He told me that the scratch test is the most sensitive for food allergies........

O.k, am I stupit or what?????? If celiac diease is not a food allergie what is it ??? And if it is then why wouldn't a dumb skin scratch test show that. Why all the blood work for celiac :confused: And shouldn't blood work be done for other food allergies.

Just feel like I'm banging my head againist a brick wall.

Anyways he told me that I just have sensitivitys for these things and that I could probably introduce them back into my diet. Just to keep a diary on how they make me feel......... I already know that, awfull :eek:

So I'm no further ahead then I was last week. I guess I'll stick with what seems to be working, just wish that I had someone that new what the heck was going on. I'm starting to get a complex about going to the doctors. I'm sure that they think I have a mental problem :o

Anyhow thats my news, take care, Patricia :)
P.S. my skin biopsy was also negative. Takes a whole month to get results because they only do the test once a month for the whole province. Something about saving money. :rolleyes:

Patricia,

The scratch testing they do in the allergy office is looking for IgE reactions.

Gluten sensitivity involves an IgA or IgG immune system response to gliadin. It is sometimes referred to as a 'delayed allergy'.

Celiac Disease involves an IgA or IgG immune system response to anti-endomysial or anti-tTG antibodies, both considered autoantibodies because they attack intestinal villi. Some people get very verbal, lets say, if you call Celiac Disease an allergy...because it is an autoimmune disease.

There are some good websites that explain it (see the food allergy page in The Gluten File), but the reason your allergist says you don't have any allergies is because you aren't showing an IgE "classic" allergy response.

IgG, delayed pattern food allergy, is getting a little more recognition these days (lots of labs test for it..and some you can self order), but hasn't quite hit mainstream allergists yet. Many of us have proven that IgG food allergy matters, and have responded positively to removing those foods.

We realized my daughter reacted to corn about six months after removing gluten. We greatly limited it for a couple of years, but now let her have it on occasion without problem.

Cara

Anyone see this yet? EIA?

http://64.233.167.104/search?q=cache...ient=firefox-a

daughter with corn allergy: bandaids have given her boils
 

What type of rash do you get (if you don't mind my asking). I called Johnson and Johnson and they swore they did not use corn. They have been safe in the past, but she just started getting a horrible exzema type rash (where bandaid aplied) and on her knee the rash has broke out in boils. :confused:

DH and crashing
 

gr8,

With the DH I experienced after going GF and apparently getting glutened, I had a rash on both ankles, both elbows and both thighs right above the knees.

My daughter who was biopsied years ago because of a rash on both knees only got a diagnose of "well, it isn't lupus....It is some kind of dermatitis, looks a little like impetago but have never seen that in winter" (plus she was 14 at the time so lets get real). The doctor and I are sure that was DH with all the other symptoms she displayed but, they just weren't looking for Celiac DH.

What you usually look for is the symptoms show up in similar areas on both limbs etc.(bi-lateral) Many times you can tell you are going to get DH because it will itch like crazy before you can even see the rash.

Patricia,
My daughter had the scratch tests done a year ago because she had so many migraines, sinus infections and was always congested. She lived in an old house and had cats so she figured she would definitely have those show up positive. Guess what, she tested negative to everything including wheat.

Finally she was tested for Celiac a few months ago and her Ttg's were very positive. Since the Ttg tests are highly specific and sensitive and her mom is a gold star celiac she knew she also had the disease and went gluten free.

I also had and am still having a hard time totally recovering from the disease. I have been gluten free religiously since June 2005. My Ttg's are still 18 which I think are a little high for someone who never eats gluten. My last biopsy in February showed some scalloping but all biopsies were negative. What has helped to get my numbers down to 18 was eliminating the only real processed food I was eating which was a certain cracker that most gluten free people said was safe. Once I eliminated the crackers my numbers dropped but the problem is I also was on hospital steroids and pill steroids for about 2 weeks about the same time....so I am not sure which caused the drop and I am too afraid to bring the crackers back into my diet.

So, if you are eating any GF foods and still crashing, I would recommend eliminating anything processed for a few weeks and stick to safe foods such as meats, fruits and veggies and stay away from anything white.

Knowing your Test numbers would be helpful. Not only Celiac tests but did anything else show up in your CBC, liver panels etc that might also point to malabsorption problems.

Llonghair

My son and I both get a kind of blister from almost any kind of bandaid... almost like it melts the skin and then the layer of skin comes off with the bandaid. We are okay for a couple of hours but more than that and skin trouble ensues.