NeuroTalk Support Groups - Got my test results

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- Gluten Sensitivity / Celiac Disease (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/)

- - Got my test results (https://www.neurotalk.org/gluten-sensitivity-celiac-disease/4335-test-results.html)

Daisy,
Last spring my daughter's hemoglobin was low. I insisted that they check her for anemia because she had become a compulsive ice eater (pica can be a sign of anemia), had very pale nail beds and was very fatigued. She is still anemic but has stopped eating ice.

--Judy

Hi Jamie,

We do sound very similar! I'm just at the begining of all this but talking with those of you who have had similar experience and know much more about all of this is really helpful.

Thanks for sharing your story and I'm glad to hear that you are feeling better. I am hopeful that I will be able to report the same thing when this all gets worked out. :)

Quote:

Originally Posted by Daisy (Post 28209)

Hi All,

A nurse from my GI docs office called today with my test results. The TTG was negative so I am assuming no Celiac Disease? However, my Ferritin level was very low at 7 (normal range 20-155) and she didn't give me the normal range but said my TIBC level was high which I guess is another indicator of iron defiency. He wants me to take 325mg of iron three times per day.

I don't know much about this and I am going to do some searching to find out what are some of the causes for this and what I should be aware of but does anyone here have any helpful advice or suggestions on what might be going on? If you didn't get a chance to read my last couple of post on this forum, I suffer from weight loss, fatigue, weakness, hair loss, abdominal discomfort (especially after eating), tachycardia, etc.

I feel more confused now than before :confused: . I really feel like this is just another piece of the puzzle but they still haven't figured out what's really going on.

Thanks for your help!

I have been going through a similar situation. I had low fettitn and high TIBC as well. My docotor is looking into b12 deficiency. I don't know much about but maybe this is your problem as well. Try looking on b12.com