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05-20-2009, 07:56 PM | #21 | ||
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Junior Member
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thanks for the reply,
I have stopped eating gluten, but haven't felt much better. I'm not sure if I should start eating gluten again for the test? My doc didn't tell me too. I would have thought that if I have effected intestines by gluten then they won't heal in a month or so time, so should still get a positive result. My main reason why I don't think I have intestine probs due to gluten is that the other antibody tests came back negative. Will see once the test gets done anyway. |
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05-21-2009, 08:13 AM | #22 | ||
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Senior Member (jccglutenfree)
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I've known several biopsy proven celiacs who had only a positive antigliadin IgG. It is absolutely possible.
According to several studies, as many as 20% of biopsy proven celiacs do not show positive anti-tTG or anti-endomysial, especially if there is only partial villous atrophy. http://jccglutenfree.googlepages.com...testsandbiopsy Being gluten free for a week or two before biopsy may not affect your biopsy results, but longer might. You need to be eating gluten for accurate blood and biopsy results. I know blood antibodies can normalize very quickly...falling sharply within one month. Antibody levels in adult patients with coeliac disease during gluten-free diet: a rapid initial decrease of clinical importance. PMID: 15554953 How quickly do the intestines heal??? I'm not sure I've seen anything concrete on that, but it likely depends upon the degree of damage. Severe damage may not heal in weeks (in fact, can take 6-12 months or longer), but mild damage may heal more quickly. I'm going to look around to see if I can find any studies or articles that address this specifically. How long have you been gluten free already, and how soon is the biopsy scheduled?
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. Last edited by jccgf; 05-21-2009 at 08:38 AM. |
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05-21-2009, 08:54 AM | #23 | ||
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Senior Member (jccglutenfree)
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Quote:
This particular study only looked at 2yr and 5yr follow up periods, and villous atrophy can persist even this far out in some people. I can't find any study that looks for recovery of villi any earlier than 6 months time. Yet, I know... the recommendation is to eat gluten right up until the biopsy... despite the fact I'm coming up short on anything to support that. Well, at least I found the recommendation from an authoritave source: University of Chicago Celiac Center Quote:
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. Last edited by jccgf; 05-21-2009 at 09:34 AM. |
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05-21-2009, 09:33 AM | #24 | ||
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Senior Member (jccglutenfree)
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Sorry about the multiple posts, but I can't seem to be able to edit my posts to add more info because the text jumps around on me when editing.
University of Maryland Celiac Center Quote:
Columbia University Celiac Center Quote:
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05-21-2009, 09:36 AM | #25 | ||
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Yappiest Elder Member
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Cara, switch your editing mode to wysiwg...it helps with that when editing.
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05-21-2009, 01:57 PM | #26 | ||
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Senior Member (jccglutenfree)
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Thanks, I'll try that...
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"Thanks for this!" says: | Curious (05-21-2009) |
05-21-2009, 04:38 PM | #27 | ||
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Junior Member
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Ok thanks for the links, you've convinced me! Pasta for lunch today then.
I was actually gluten-free a couple of weeks before the bloods, I told my doc this and he didn't seem too worried, so maybe thats why the other tests were negative. Been gluten-free around 5-6 weeks now. Not sure when the biopsy is, am waiting for the letter, where i come from these things normally take a while so prob get my 4 weeks of gluten in before then. I am really keen to sort out my brain fog asap (writing my thesis at mo and am a long way behind schedual), so that's why i was reluctant to do anything that might set my progress back a couple of months. |
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05-21-2009, 05:06 PM | #28 | ||
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Senior Member (jccglutenfree)
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It stinks to have to go back on the poison ... but you'd hate to waste a good biopsy with questionable results. And, yes, as far as blood tests... 3-4 weeks COULD make a difference. The data on that is pretty clear. The doctors should know about this... but it is a common pitfall.
Of the various antibodies relating to gs/cd... I've heard the antigliadin IgG antibodies are the earliest to show up and the last to go away...so that just might make sense that that is all you were left with. You are lucky that your doctor included the antiglidian antibodies in the test panel. I'll give him that much. Too many doctors are excluding them, and yet... sometimes, plenty of times, they are the only antibody present. It will be interesting to see if you notice any changes when you put gluten back in your diet. Sometimes people who really didn't think they were symptomatic... become symptomatic when 'challenging'. Other times... not!
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06-01-2009, 09:53 PM | #29 | ||
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Junior Member
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I've been back on gluten for about a week now, and the first few days I had zero symptoms and was thinking the whole gluten sensitivity doesn't apply to me..
But after about day 3 I started really noticing changes. Even upset stomach which i hadn't really noticed before. Stools have changed a lot. Feel sick after eating bread. It may be a few months before my biopsy and am in a point in my studies where i can't afford to feel ill, so am going to avoid gluten untill atleast I get notice of my biopsy |
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01-10-2011, 07:58 AM | #30 | ||
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New Member
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Gluten sensitivity could lead to Celiac, which often results in b12 deficiency. **
I have been following a gluten-free diet for some time now, and I've never felt better. LS. Quote:
Last edited by Chemar; 01-10-2011 at 08:22 AM. Reason: NT linking guidelines |
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